ENT appointment- any advice

[wobblymum1]

I’m writing this from a worried place so apologies if I’m making a mountain out of a molehill.
my DD7 was referred to ENT after a year of 8+ bouts of tonsillitis, 5
in 5
consecutive months. It’s been grim on her, she’s missed so much school, hard for me
on my
own and trying to Maintain my full time work, and Her autistic brother who finds the change in circumstances when she is poorly very hard (she needs me
a lot more, his routines get messed up as I need to prioritise her meds, calpol, non sleeping due to high fever, etc. it’s been really hard.

fast forward to now and following an a&e trip where a consultant found what she thinks are rare nasal polyps in her nose affecting her breathing, it’s been expedited to urgent and I got
the call today that we have an appointment next month (amazing as I was expecting a year)

however (and thank you for
reading this far)
the a&e consultant Said she’s not sure they will remove
her tonsils as she only has one confirmed strep A swab in last year. I said it’s only been on the last visit that they did a swab, and only because they were
reluctant to continue prescribing antibiotics every month. she’s had I think 4 or 5
10 day prescriptions since may for tonsillitis so I just assumed that meant it was bacterial but from what consultant said they may not “count”

I now feel oddly
Anxious that the appointment will be them saying
we need X number of + swabs for strep A before we remove them so see you again in a year (I’m simplifying of course but you catch my meaning)
I don’t want her to have an operation, I’m scared of it having known a child who died having it and not coming around after the anaesthetic. However, I equally don’t want another year of 2-3 weeks of her being well then a week of her being poorly.

am i over thinking this? I almost
feel like I need to go in armed but I know that’s madness. Doesn’t help I’m exhausted and balancing my son’s referrals too.

thank you for
reading this 🌼

I’m fairly sure I commented on your other post, that’s great news that your DD finally has an ENT appointment. At DD’s consultation we were told the normal criteria was 7 confirmed (in other words documented by GP + prescribed antibiotics) cases of tonsillitis within a year, or alternatively 5 cases per year for 2 consecutive years. DD ended up having 10 cases within 4 months so there was no debate that they needed to come out. We never had any mention of Strep A by the consultant, she was swabbed a few times by the GP but all negative.

You did 💞and thank you again 🌼I couldn’t actually believe it when they called to say we have an appointment.
wow 10 in 4 months actually makes me feel like we haven’t had it that bad, that must have been horrendous.
part of the confusion seems to be a gap between what the gp has documented vs what the hospital has and I don’t really understand that.
the discovery of these nasal polyps seems to have been what’s suddenly swung it to become urgent and an appointment at the end of next month. which also confuses me as apparently they’re almost unheard of in children but I’ve slightly lost the plot with new things wrong so will just try and trust the system and that they know what they’re doing.