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Chronic Bronchitis

1 reply

Bernie95 · 17/07/2023 07:11

My 15months old son was recently diagnosed with chronic bronchitis, an inflammation of airways in his lungs resulting in difficulty breathing. He has significant irreversible damage to his lower left lobe in lung, resulting in partially collapse.

It has taken 7months to identify this is what has been wrong with him, following a 12 day admission in December 22 with brincheolitis, flu A and andenovirus. Since then, he has had breathlessness, cough, mucus and additional admission to hospital whilst we were on holiday in April 23 for 5 days of oxygen support. Throughout my time of countless visits to GP, A&E for a long long time I am angry that this wasn’t identified sooner which would have reduced the irreversible damage he has to live with for the rest of his life.

is there anyone who has a child who has been diagnosed with bronchitis, and advise what treatment options you have been given? The only option they have given to my son is an antibiotic with he will be on forever and breathing physio.

thank you, I hope someone could shed some good news on the above topic. Right now, we’re all very hurt xx

OP posts:
LaughingLemur · 18/07/2023 20:55

Hi, sorry to hear how poorly your son has been and that he has permanent damage to his lungs. My daughter has chronic bronchitis but didn't develop it until after a nasty virus as a teenager. Treatment has been Azithromycin (antibiotic) which has helped enormously in reducing the mucus.

The respiratory physio she saw was amazing. She gave her a device called an acapella which you use to clear mucus and showed her the technique used. She was advised to try to limit the amount of viruses she gets to avoid further damaging her lungs. Her health ironically improved massively during covid with the home schooling and then everyone had to mask at her school so she didn't get any infections at all. With a 15 month old though it's impossible to avoid viruses I would think. I guess you could try to be careful by not meeting people if they are ill, but if at nursery he'll get everything going anyway so probably futile. Make sure he has vitamin D drops, gets flu vaccine etc and hope that this winter isn't as bad.

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