Can anyone help me with what this means?

[Ilovepugs2017]

Hi,
Received this letter today about my daughters mri results. She’s 6. Can anyone shed light on what the terms mean? Multiple foci of haemosiderin in the right occipital lobe?

Just waiting on a call back from her consultant but a bit anxious at the moment.

Not a doctor, but sending you lots of unmunsnetty hugs.

The fact they sent a letter and haven't called immediately is hopefully reassuring (our experience has been that they call immediately for something scary) but do make sure you arm yourself with as much information as you can. We have experienced the absolute worst of the NHS and the most fantastic best, literally within the same specialty and department of the same hospital!! Be your daughter's advocate, because the moment you are out of sight the next patient is their focus and concern. Make sure you write down in advance the questions you want answered because in the moment you will forget. Also don't be afraid to ask them to repeat things and explain terms, and make sure they know you're writing things down - it shouldn't be the case but the quality of your care / speed of decision making etc. massively improves when there's a written record you have made (this is the most useful advice I got from another neurosurgery family, and wished I had known earlier!).

Sone kind of (past) brain bleed? Why did she have mri? What are her symptoms? Ask if this is likely to change? Ask what is the differential diagnosis?

She is under a consultant for headaches which he thinks are migraines. He wanted to do a cat scan to make sure they weren’t missing anything. Something showed up on that, calcium deposits hence why they done an mri for a more detailed look.

Foci is plural of focus.
Heamo means related to blood

The occipital lobes are at the back of the brain, one each side.

So multiple areas within the right occipital lobe that may have bled in the past? 😳

Thank you for the advice. I’ll definitely do these things. I’m hoping it won’t be a huge waiting time to see the neurologist, her consultant called me back today and said he can’t explain in any simpler terms because he isn’t entirely sure as it’s not his speciality. He did say that the neurologist will look at the mri and may ask to see her for further assessment if they are concerned

Sorry forgot to say her symptoms are mainly head pain (which has improved which the medication they’ve given her). She does say sometimes it feels like she’s dreaming when she’s awake but I know that can be typical with some migraines as I get them myself.
Can’t think of anything that could have caused a brain bleed tho unless typical kids falls can cause that?

If you Google heamosiderin it doesn't mean bleeds, more iron buildups or something?

No sorry it can indicate past bleeds.

Hopefully you'll get to talk to the specialist shortly.

Much better than us on here!

Hope your Dd is OK .

I did Google it and yeah it come up with both things past bleeds which leaves a staining and iron build up.

She is ok in herself and doesn’t seem to have any other symptoms other than the migraines.
Yes hopefully we won’t be waiting too long to speak to the neurologist tho I imagine there are long waiting lists with the NHS currently

how was her birth etc?
it may be considered incidental finding if no other symptoms but of course you need a neuro to advise and explain. A private neuro appt will be £250? If quicker.
you want to know and ask if is something that can change over time .
(dd has migraines with a different "incidental" structural finding on mri)

Her birth was ok, I got induced as they were worried I was measuring small for dates. Due to the nurse not keeping a proper close eye on me after I had an epidural my daughter was getting in distress and they had to take me to theatre and help get her out using ventouse method but she was healthy. No issues in her baby years or anything.

The consultant did say it could just be an incidental finding whilst they were looking for any other possible causes for her migraines. He wants the neuro to investigate further however as this is not his speciality. The main things she complains of is head pain and sometimes it feels like she’s dreaming when she’s awake. She doesn’t appear to have any cognitive delays or anything and is quite bright for her age. Enjoys reading etc.

Possibly something happened in utero?
If nothing since if only headaches
Which possibly familial
Maybe just incidental

Not mucch on paediatric and this refers to a child taken in with critical illness

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6938852/

Keep a headache diary and refer to paed neuro headache clinic GOSH is a national centre my dd attended and has tried various preventive meds after propanolol stopped working

https://www.gosh.nhs.uk/wards-and-departments/departments/clinical-specialties/neurology-information-parents-and-visitors/clinics-and-wards-used-neurology-service/headache-clinic/

The tablets she currently takes prescribed by her consultant are pizotifen and they seem to have made quite a bit of difference. She doesn’t complain of the pain as much so they seem to be providing relief. They did say there aren’t many meds they can try because of her age but luckily she seems to be tolerating the pizotifen