Hi,
I have SVT, diagnosed august last year. Mine unfortunately cause me to faint - lose consciousness. They originally thought I was having seizures and spent a long time in hospital on heart monitors but thankfully they're not seizures. I just got some reason violently twitch / roll my eyes when I faint.
My heart can go up to 230bpm and my resting heart rate is very high. My average heart rate this week is 120. I thought I was being misdiagnosed too but after extensive testing I'm confident it's SVT. I'm on medication now so I don't get as many runs anymore, but my heart is still quick. I'm waiting for ablation surgery.
I also have LQTS so any beta blockers are a nono for me. I have something called an ILR implanted in my chest. It's a constantly running ECG that my cardiologist can look at remotely whenever needed and I also have a button to press if I get an arrhythmia and it'll alert the hospital. The ILR has been invaluable with my diagnosis as SVT / arrhythmias can be very hard to be picked up on an ECG as it's just a snapshot. A tape / holter monitor can be better but that can be tricky too if you're not having daily SVT runs, they won't show.
Things that have helped - yoga, walking. I can't do any HIIT exercises, but those have helped. Drink PLENTY. Drink even more than you think you should. Keep up the salt / potassium. Lack of salt sends my heart funny. I have low BP and that can trigger it sometimes too.
It all started last year. I had panic attacks daily it was the scariest thing I've ever experienced but after a year of it now, the fear has settled. (Panic attacks put me into SVT so it was a constant cycle)
I take Verapramil and fludrocortisone.
It's miserable, but hang in there.