Diabetes insipidus

[beebee83]

Hi everyone just looking for abit of advice or some sort of guidance my daughter who is 1 years old has recently been to hospital after the Dr referral due to believing she maybe diabetic however the lovely Dr at hospital said it maybe called diabetes insipidus never come across anything like this she does drink way too much water 2liters urinates excessively due too water intake but has anyone had experience with this or is going through this not sure what to think or make of it all.
I'm waiting on her final urine sample to come back and we have been booked in for a deprivation test just abit worried.

Diabetes insipidus is a disorder of salt balance regulation - it is quite rare, and related to a hormone system connecting the brain and kidney. The children are peeing too much and drinking as much as they can to replace it. The outlook and treatment depends on the specific cause which can be a few different things. From your description it sounds as if they're still deciding if it is that or not, once the tests are completed and a diagnosis made would be the sensible time to ask questions, more tests might be needed if it is DI to determine the cause.

Much more common and benign in this age group is the other way round - the child is drinking too much (out of habit) and the peeing is the body just trying to keep things in balance.

I have diabetes insipius. I take an anti diuretic hormone. Before being diagnosed and treated I needed to urinate every 20-30 minutes day and night. It was miserable.

DD2 was admitted to hospital due to diabetes symptoms. She was diagnosed with 'squash syndrome' - as @Unseenentity mentioned - she was drinking loads of (very dilute!) squash and so she was peeing loads.

Thank you for sharing. I'm hoping it turns out to be a habit. I don't really want her to undergo the deprivation test. It doesn't sound pleasant, but if she has to, then we have to.
She's constantly drinking water, and the amount of nappies I go through is a nightmare 😫 both of my toddlers only drink water, and she's forever taking her sisters bottle as well.
Fingers crossed 🤞

Hi if your still seeing this can I ask what it turnt out to be?