Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

Children's health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

T1D parent support thread

7 replies

MeMyBooksAndMyCats · 08/04/2023 22:06

Making a thread for parents of T1D children inspired by a thread earlier.

I'm having a really really hard time with ds7 DX of T1D 3 weeks ago. I hate doing the injections I always feel like I'm hurting him or doing them wrong. He's only allowed me to do his legs twice & the rest of the time his arms. He moans his tresiba hurts everytime and I always sit questioning myself am I doing it right.
He's been having hypos a lot in the night and afternoon and I'm questioning if his ratios & dosages are correct. I don't want to keep feeding him to spike him it seems insane and when I do spike him it never says high for long.

Anyone else need to moan and just get it out of their system? Reliezed there's a lot of T1D mums (and dads!) on here so it'd be nice to support each other if anyone's interested as I feel like I'm having a nervous break down with all the stressS

OP posts:
FinallyHere · 09/04/2023 09:30

Nowadays, fully adult DC

Dr Bernstein made a big, hugh difference to our lives. Hope you find the support you need

http://www.diabetes-book.com.

All the best.

MeMyBooksAndMyCats · 09/04/2023 10:26

FinallyHere · 09/04/2023 09:30

Nowadays, fully adult DC

Dr Bernstein made a big, hugh difference to our lives. Hope you find the support you need

http://www.diabetes-book.com.

All the best.

Thank you, I've heard of low carb high protein diets helping a lot.
Thing is with him being 7 he wants to eat everything a normal 7 year old does.

We did find yesterday I didn't give insulin for a low carb (30g) and high protein dinner and he didn't raise at all. So now I'm questioning everything 😂

OP posts:
FinallyHere · 09/04/2023 10:30

It's not easy, is it ?

We found the continuous glucose monitor really very helpful to 'surface' changes in blood sugar. They are not cheap but invaluable to help understand the connection between sugar levels and how we are actually feeling esp after a heavy carb load

https://www.freestyle.abbott/us-en/home.html

Still use one once or twice a year to check in or rather make sure tuned in is accurate.

strawberryicecreamice · 09/04/2023 10:38

He'll be in the honeymoon period you make insulin again for a few months so don't take the no insulin was low carb working yet.

FinallyHere · 09/04/2023 10:39

Just for the record, it's low carb high fat medium protein.

It's so very different to so much of the dominant paradigm of 'healthy eating'

It's not so easy to over eat fat, unlike carbs especially manufactured carbs which are pretty much designed to be over eaten.

Don't want to bombard you with too much info, this way of eating is backed up by a lot of of good science.

There is lots of literature around, starting with John Yudkin's 'pure, white and deadly'.

The Art and Science of Low Carbohydrate Living: An Expert Guide to Making the Life-Saving Benefits of Carbohydrate Restriction Sustainable and Enjoyable by Stephen D. Phinney, Jeff S. Volek (2011) Paperback

Phoney and Volek also have a version about performance for athletes to show how it really does work for everyone

And explain the rise in obesity throughout the population of many developed societies from the adoption of low fat high carb way of eating.

strawberryicecreamice · 09/04/2023 11:53

Contact the team suspect doses need to be lowered while in honeymoon poss will only need the tresiba for a while. Is the insulin cold? Hurts more. But large doses can sting

New posts on this thread. Refresh page