Suspected appendicitis then IBD. Waiting follow up

[PoorlyDS]

My ds was in hospital 4 weeks ago with suspected. Appendicitis that wasn't- high temp and vomiting before admission. He had inflamed bowel found on the scan they did to check if it was appendix. 2 weeks of strong antibiotics x 2. Just after he came home first time he started vomiting again and this time they said he tested positive for norovirus.
He's due another scan 14th but complaining of tummy ache again today. Low level and he's gone to school but I'm stressing
They said it might be Crohns or UC bit there's not plan to test for those yet - no colonoscopy or anything. Should I push for that ? Could nasty gastro virus still be upsetting him 3 weeks later ?
I guess I'm looking for anyone with similar undiagnosed stuff that then turned out to be IBD or indeed anyone who's DC have had a weird virus like this and it's taken a while to get past. I'm solo this week and feeling super stressed and also using MN for the handhold. I know nobody is able to advise me medically. Just support from non vipers would be fab

Not a child, but going through this myself!

Had noro, then Campylobacter and lingering symptoms months later

My colonoscopy is tomorrow to investigate, they weren’t sure whether to do it but decided they will

So we shall see what that shows up, but you may need to push further at GP etc if you feel you aren’t getting anywhere.

Took a few trips there with symptoms to get to this point

Big hugs to you all, it’s miserable xx

Like above poster-
my dd6 was in hospital a few months ago with noro+ campylobacter + a uti. She was very poorly. it took weeks for the sore tummies to stop, at least 8 post getting home.
Gp says most likely her lymph nodes still inflamed from it all. She is showing some Ibs symptoms she never had before all this.
sending a gentle handhold and hug, I’m solo too and it’s so nerve wracking not knowing what is wrong, every
time she says her tummy is sore I can feel the panic rising on me ☹️X

Thanks so much for replying. I'm home alone and anxiety through the roof but knowing stuff can just take time and we've got a follow up in place is reassuring me.

Just updating to say he's tested positive for coeliac on bloods done a few weeks ago but doc has repeated them as said it could be a false positive. Ask repeated poo test for checking of bacteria (for Crohns?) testing for Calprotectin?
I feel so anxious that he may have this life changing thing. Annoyingly missed call from the doc today as at work and she's gone when I called back to get the new results.

My DD has Crohn's.
Her symptoms were: gradually got slimmer - didn't exactly lose weight, but was growing without putting on weight, then growth stopped. Pale with dark circles. Her hair, which had always been very pretty, looked dull and brittle and thin. She stopped wanting to walk to school with friends. Then she started really finding it hard to get up. She was ten at this point. She had diarrhea but didn't say anything, but I knew someone did as there were splatters on the underside of the toilet seat when I was cleaning. Breast buds disappeared. Then she started getting random temperatures that lasted 48 hours or so (her "normal" temp was 37 or so. It's only since she's been treated that her "normal" temp is 36.2 which I now think was chronic low fevers). She barely ate anything and would rush to the toilet in the middle of a meal. After school she just lay on the sofa under a blanket, she didn't want to play. She would get really breathless if we walked more than a couple of hundred metres. Finally we got sudden tummy pain and vomiting and occasional severe rectal pain. It was, I have to say, horrendous but she has responded really well to the treatment and is so much better.

Apparently her bloods were classic for IBD and they knew straightaway it wasn't coeliac. Moderate inflammatory marker (17), high platelets, high ESR, low vitamin levels I think. The scopes were just to confirm what by then we all knew. Dd didn't have calprotectin but she did have coeliac screen (negative).

I haven't known of false positive coeliac screen before. I hope it is coeliac - it's a much better option than IBD.

He's just tested positive again for coeliac but they've said there's another "genetic" result to wait on.
We've asked for a call back as DH didn't ask if we should immediately start GF diet but his tea tonight was already GF and we've bought some GF bread and snacks for packed munch tomorrow. I feel all over the place. They said Crohns was a possibility but assuming now they've had two lots bloods saying coeliac and stopped mentioning IBD might be that ? I may start a new thread about best resources for coeliac as Google is a minefield. I truly hope your daughter is well. My friend's daughter got diagnosed recently but like your DD responded fabulously to the treatment.

Sorry to hear that. Generally it isn't recommended to go GF until the diagnosis is confirmed and they've decided whether to do a colonoscopy, etc., because if you go GF it can reduce the markers.

He's had 2 positive tests so I'm sort of 99% sure but he's got GCSEs coming up and I don't want him to flare up - that's not the right way to describe it but I worry he'll be poorly again. He's not got any reactions/ symptoms to eating gluten and has pasta and bread most days but I worry he's so used to feeling rough he doesn't know what feeling well could feel like.