DD's lost use of legs

[MrsArchchancellorRidcully]

Dd is 14 and befor Xmas started with terrible nerve pain in her right leg. Ended up losing the feeling in her right foot and since then had to use crutches. Lots of medical tests. MRIs etc showed nothing. Sunday just gone she woke up and her left foot had done the same and gone numb and she's lost the ability to walk overnight.

We've been to hospital and has another MRI. (Nhs have been superb) but they can't find anything wrong. Consultant said the hardware is fine , the wiring is faulty. They've sent her away to have physio and come back on 3 months.

We're frantically trying to cope. We've bought a wheelchair and borrowed one. Looking into blue badge and radar key. Luckily we have downstairs loo etc.

She can't get back to school as she gets a bus. We live 45 mins from school as she goes to the nearest grammar. We can get her to the bus but don't know how to get her on and off the bus. DH apparenty thinks they have to facilitate her getting on the bus under disability act. I'm not so sure as she doesn't go to her nearest comp. We're just scuppered. She refuses to change school as she has good friends at school. We can't drive her long term as DH and I both work full time. DH often travels away overnight. I can occasionally wfh but not full time. Does anyone have any ideas or help. We have no expertise of disabilities and a bit lost at sea if anyone has any ideas.

No. I looked up the symptoms of Lyme Disease and some of them match. I'll enquire. Thanks

@JanetTaylor friend’s child saw Jaywant. Working on basis it’s FND - he is a doctor who doesn’t like to diagnose FND officially and you’ll probably get a software problem analogy. He’ll probably refer her to the Oxford Centre for Young People in Pain/Long Covid Clinic (I am aware she’s not in pain but FND kids are referred in). Be warned the clinic lead is a rheumatologist who is quite vocal about hypermobility syndrome not being a thing in paediatrics.

My friend’s daughter went in for 2 weeks rehab - physio, OT and psychology each day and an hour of school. My friend’s daughter was an ambulatory wheelchair user and the aim was to get her out of it by end of 2 weeks - which they did. They were very anti mobility aids, because of entrenching symptoms.

It is very much psychologically driven. My friend’s daughter it was suggested she was assessed for autism; however, they can’t do the assessment. She’s now about a year into a 3 year wait list on CAMHS.

Wishing you and your daughter all the best.

@BlueBellIris , that is really helpful, thank you. It would be great if my daughter gets seen at the pain clinic, as they sound like just the approach she needs. She has a lot of pain, including neck, back and stomach. She got diagnosed with autism in January of this year.
Thank you. Best wishes to you too.

@JanetTaylor how did your daughter get in at the JR?