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The severe end of constipation

6 replies

EndlessNappies · 29/12/2022 08:50

My 6 year old daughter has not had a poo for 2 weeks now, bar rabbit type droppings and overflow. She's on 15mls of Lactulose x3 and 10mls of Dulcaste x3 daily. Spellings are wrong there I think! Movicol a no go unfortunately...

Suppositories a no go, all other laxatives tried. Still in nappies, has piles, vomits, high temps, febrile convulsions when very bad.

She's under consultant care and continence team. Eric website useful to a limit.

Anyone else experienced the same thing? She has little control over her bowel.

OP posts:
Are your children’s vaccines up to date?
BabyST · 29/12/2022 21:35

You mention she does pass stool like balls of poo how often is this? Any abdo pain with it? Is her belly large? More than normal

LadyCurd · 29/12/2022 21:38

Movicol was a no go for ages for mine but it’s what she needs. She’s needs a full disimpaction from sounds of it. We keep in Fridge as tastes better and add caramel drops or syrup and it’s kinda okay. She might need suppositories or an enema if she won’t do Movicol.

melissasummerfield · 29/12/2022 21:42

Is movicol a no go because she won’t drink it? If so try putting it in chocolate milkshake - I did this with my ds who had bowel issues including impactions for several years.

Hope you get sorted l, I know how horrible this is for both parent and child!

EndlessNappies · 30/12/2022 07:57

She pukes Movicol up, has done since a small baby. We tried the disimpaction but had to stop as she wasn't keeping it down, she has reflux on top.

I personally feel she needs good clearing out at the hospital but the doctors seem very reluctant. I don't know what the answer is going forward, bless her. School is very good but she spends most of her life smelling of poo...just seems to seep out of her. Little bladder control either.

Her tummy is hurting her and she's not eating. The very small amount of poo she is passing must be relieving her a bit. She's being assessed for autism, she has never got the hang of toilet training.

Thanks for the replies.

OP posts:
Roselilly36 · 30/12/2022 08:28

Aww handhold OP, we had very similar problems with DS2, we saw a couple of consultants privately to try to resolve the issue.

We did the disimpaction routine, using movicol, that worked well, it’s such a shame your DD can’t tolerate it, then at night he was prescribed pico (pico sulfate) DS hated the movicol but it didn’t mind the pico, it was a fruity tasting syrup that he took happily off the spoon.

Unfortunately, the overflow diarrhoea will continue until DD system is cleared out. I know how worrying it is, it went on for years with my DS, school got very difficult about it in the end, calling me asking what I was doing about it. I was honestly trying my very best to get it resolved.

We saw Dr Hii at the Nuffield, that man changed our sons life, got it resolved with the meds, recommended allergy tests. I felt so desperate by the time we saw him. He was absolutely brilliant, nothing invasive, just felt DS’s tummy. DS also suffers with reflux and is severely dyslexic too. I hope you find a solution for your DD soon, has your GP made referral to Paediatric Gastroenterologist?

clipclop5 · 03/01/2023 00:30

Sodium docusate worked miracles for DD. It wasn’t until she had an unrelated surgery and was prescribed it for painkiller related constipation that we discovered it. Before that she’d struggled for years, I couldn’t believe it hadn’t been recommended before! It’s the only laxative we’ve tried that doesn’t cause tummy cramps/nausea or that horrible urgency, just makes things really soft and easy to pass with no fuss.

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