My child has been sick a year now

[Freshmind001]

My child has been sick coming to a year now and symptoms have not improved by antibiotics, nurofen or calpol. She's constantly got a very strong cough, CONSTANT fever and always complains tummy hurts, and has really cut back on meal times. I have been going back and forth to Gp's to hospitals and I feel like like I'm at wits end with it all.

I'm actually worried my child may have a more serious illness and it's not being picked up.

Does anyone have experience with something similar or could advise ?

@Freshmind001 i have to admit and we were fortunate as my DS’s GP at the time was a paediatrician by trade and so he was on the call and would order blood tests whenever he had a petechial rash. Then, due to a change around at the doctors, we had a new lady who was USELESS. Both my DC had awful
stomach aches (DD had heartburn), they were both tired etc and I had to literally fight for over a year for a blood test and it turns out they both have coeliac disease! In your instance, I would bypass the GP and go to A&E and demand bloods - what about calling the childrens ward and speaking to a nurse? See what they say and tell them your concerns x

My goodness, so glad she at-least got her diagnosis. This very much also sounds like my DD excluding the diarrhoea. She does occasionally need to all the sudden go toilet but her bowels seem normal I think.

I wish they could do these tests in her and really upsets me why they won't. I am taking her A&E at the very next instance

A few people have also mentioned this disease. I haven't though about calling Children's ward that's a good shout, thank you.

@Freshmind001 I honestly never knew how many symptoms were related to coeliac disease. My DD would have horrendous headaches that would wake her from her sleep, body aches, heartburn, tiredness, rashes - and in the end I phoned the children's ward who said to bring her in as I was getting no where with my GP (she refused to do bloods - one simple blood test that got to the root cause of the issue!). I really feel for you - I would either change GPs or seek a second opinion from another GP at your current practice or call the children's ward and ask for their advice. Your poor LG, it is miserable for her to be so poorly for so long :(

I had to push very very hard for it. I was at the drs most weeks with him. His first tests came back with anaemia so I was proven right, he is struggling still and is now under a paediatrician and his weight loss and lack of growth combined with enlarged lymph nodes means they feel they’ve got to check him out again. He’s had his next set today at hospital.

So very sorry to read some of them. Some of them sound horrendous and you've just been fobbed off again and again.

You don't need a GP referral to go private if you are organising it yourself. You just ring up the consultant's private secretary and make an appointment. However, if you have private health insurance you will have a restricted choice of consultant/hospital and you have to go through your insurers. Your insurers may insist on the GP referral, which unfortunately puts you back in the position you are already in.
I think you just need to get on and do it OP. It all sounds so worrying.

They mentioned this to me actually so this is the route we are going to take. I have no idea what it will cost but it needs to be done asap! I'll feel at peace once I know they have done all tests on her.

We paid for a consultation and he ordered the tests on the NHS. We then saw him again for results and it cost £130 per consultation - this was about 15 years ago though.

another thought I had was that as a child I was constantly under the weather with temperatures and eventually was diagnosed with duplex kidney and was repeated having uti- doesn’t fit with her other symptoms but it is another thought

My DD (5) has been the same for almost 9 months and we are only just out the other side of it. Her symptoms were constant sore stomach, high temps (over 40), sickness etc. we were back and forward to a&e constantly. They did blood tests to check her immune system and everything came back fine but she was only managing 50% attendance at school because of constant illness. Turned out hers was her tonsils, we had to fight so much to get her on an emergency list to have them out, and it only ended up happening because she became seriously poorly with quinsy. She just had them out last week and I'm hoping she will now be back to her normal self. Don't know if this helps but it's worth them keep checking her tonsils.

Is there an option to get a panel of bloodwork/other general tests done privately? Then if they find anything you can go back to the GP.

Also put together a timeline of any possible triggers in the run up to this starting and see if that guides any private testing. Can you get copies of testing that has been done, to see if anything is within limits but still indicative of a problem?

Sorry - just saw I commented on an old thread.

I know it's an old thread but @Freshmind001 I really hope you got some answers.

My story is exactly the same as mumof chronie.

Very ill for several months with with fevers,mouth ulcers,stomach pains,weightloss,fatigue, loss of appetite.
Unfortunately GPS are not well educated on inflammatory disease so don't always request the right tests needed.
Thankfully after several months of being fobbed off I turned to our dentist to ask advice about the ulcers. It was him who reffered her to the dental hospital who picked up on crohns disease and reffered my daughter to the gastro team at our local hospital.
Thank goodness he did because the correct test were done and my daughter was diagnosed with crohns disease.
It was around 6 weeks after that we started to get our daughter back after starting treatment.
Fast forward 6 years on my daughter is now 17 and has had the most wonderful 5 years of living a normal active life with losing just a couple of days worth of days off due to routine hospital appointments.
So many GPS fob us parents off because of their lack of knowledge,leaving children to suffer with symptoms. It's not just children it is adults too. A lot of adults think they are living with IBS because that's what their Gp has diagnosed,when a lot of the time it is actual Inflammatory bowel disease and without it being picked up and treated damage is being done within the gut.
As a parent we have to be our child's voice and push for these tests.

Sorry guys I didn't mention at the start of my post that I was referring to my daughter who was 11 at the time of diagnosis.

Sorry to hear about your poor daughter op. You really need to get her bloods done asap like a full blood count. The gp should be doing this , if you have the money I’d go private if you aren’t getting any help . I don’t know how it works in the UK but can you just insist on bloods?

Just wondering how your daughter is now OP?