DD6 needs heart surgery and I'm so anxious

[NNSingers]

Hi all,

I am struggling. My fit, healthy, full of beans 6 year old daughter was referred to a cardiologist a few months back, as our GP thought she heard a slight heart murmur. Fast forward to last Thursday and the echo showed up a large ASD. The doctor is baffled as to how full of beans my daughter is and how healthy she has always been! The Doctor discovered a possible partial Cor Triatriatum in her left atrium which bizarrely could be the reason that she hasn't had any symptoms from the ASD.
I was in complete shock and a mess after the appt but desperately trying to be positive. The doctor said it can all be fixed!
Surgery will be needed, we have a follow up appt on the 1st November.
Just wondering if anyone else is or has been in the same boat? Needing reassurance. Thank you x

Oh OP, I’m so sorry! What a shock that must’ve been! If the doc said they can fix it, that is the best news. Really sending you light and prayers and that everything will be sorted quickly for you and your DD 💐

Often these things aren't picked up until symptoms start appearing so it's great that it got picked up at an early age, the surgery is very simple thankfully. Depending on size they usually inset a tiny metal mesh disk, they usually prescribe blood thinner for a few months after the surgery to ensure it heals properly and do follow up scans to ensure the device stays in place as she grows. Seeing the device on follow up echos is always a little freaky but in an amazing way. It's actually extremely common to have an ASD and most people have them without knowing

that must be such a hard thing to go through! I remember my cousin being diagnosed with an asd around the age of 11. I still remember being surprised how quickly he was up and about after the surgery and today he’s a healthy 22 yo ,all he has is the scar