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Original poster

Asthma support thread

12 replies

Schulte · 18/10/2022 14:54

A support thread for all of us with asthmatic children. Come and join, we’re here to help each other.

OP posts:
Original poster
Schulte · 18/10/2022 14:57

DD2 is 13 and has had asthma since she was 7. She had a bad winter last year and is now under the Royal Brompton. I’m apprehensive as we’re moving into the colder months.

Anyone else?

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Mrsweasleysclock · 18/10/2022 15:53

Thanks for starting this. Such a tricky thing to manage. What works for one child doesn't for another. So horrible seeing our little ones struggle.

Original poster
Schulte · 18/10/2022 16:14

For me the worst thing is when the doctors run out of ideas. Our GP last year admitted that he was out of his depth as DD didn’t seem to respond to the steroids, extra preventer inhaler, nebuliser with saline solution etc. We tried it all. Three months of hell.

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Mrsweasleysclock · 18/10/2022 16:21

Yes so true. Hospital were baffled that the oral steroids didn't work so said to go back to GP for better management and possibly montelukast.

GP gave the montelukast and changed his inhalers but said if it doesn't work then to go back to hospital.

Such a palava.

Original poster
Schulte · 18/10/2022 17:19

Have they considered a chest infection at all? DD had two bad winters and both times it was a course of erithromycin that finally turned things around for her.

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Mrsweasleysclock · 18/10/2022 17:23

Chest is clear. No fever. No signs of infection.

sidsgranny · 18/10/2022 17:30

Ask about Xolair injections. I've been having 4 jabs every other week for nearly 7 years and it's been a game changer. Think only for people over the age of 6 though.

Original poster
Schulte · 18/10/2022 17:35

So was DD’s. Or so we were told over and over again. Until we saw a paediatric specialist who noticed that there was no air entry in the lower part of her right lung. I honestly don’t know if it was the antibiotics clearing it up in the end or if it was a coincidence, of course.

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Sirzy · 18/10/2022 18:23

Ds has been on profalactic antibiotics 3 times a week of years now which helped massively in getting him under control.

consultsnts have access to a much wider range of preventer inhalers than GPs which may help to

Original poster
Schulte · 18/10/2022 18:34

That’s interesting @Sirzy , is it azithromycin he takes?

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Sirzy · 18/10/2022 18:36

Yes, 200mg every mon/wed/fri

he stil gets chest infections but touch wood nothing as serious as he used to get

Original poster
Schulte · 21/10/2022 07:28

Anyone else want to join?

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