11 week daughter diagnosed with Hydronphrosis

[Beastlybeautiful]

My 11 week daughter was taken to hospital and put on antibiotics due to a UTI infection. When they did a scan of her kidneys they said both kidneys are dilated and she had hydronephrosis. Doctors said they're not too concerned as it's mild but as a mother I can't stop worrying. They'll be carrying out further tests including a scan of her bladder and then further diagnoses. I'm really worried as it's both kidneys

It might be PUJ obstruction, where the ureter tube is slightly kinked and doesn't let the urine flow through freely. I had an operation to fix this in June this year as an adult but if you look online for info on a pyeloplasty which is the operation they do to fix it, it's all about children as it's much more common in children than adults. It must be scary when she is so small but my urologist was amazing and he said he does this operation all the time on anyone from tiny babies to grandmas and granddads. Hope you get some answers soon, are you under the care of a urologist?

No not yet they've said it's very mild right now but im just thinking worst case

Hello I've had this myself but not my children I've had it in all of my pregnancies and I've had a nephrostomy in my first pregnancy which was absoloutley bleak I strongly strongly strongly advise against having this procedure even if they suggest it and also advise against a stent they are agonising and dirty and give terrible infections

Why are her kidneys dialated has she got a stone in her kidney or a cyst?

I would position her on the opposite side of the effected kidney so if her left kidney is bad place her on her side on her right to allow it to drain down

Ask them to catheterise her if they say they want to stent or use a neph, they are absolutely the worst thing ever and they are only problematic and should only be used in palliative care

Has she had a curse of abx?

Cultkid in nicest possible way I would advise against giving advice such as refuse a stent etc, I had one after my pyeloplasty and whilst it was slightly uncomfortable it was fine and medically necessary to allow my ureter to heal after surgery. Not everyone will have the same experience as you with stents etc, it sounds like you had a horrible one.

OP make sure you get referred to a great urologist who has experience of dealing with children. The scan will be to try to find out the reason for the blockage, more than likely it will be PUJ obstruction.

www.childrenshospital.org/conditions/ureteropelvic-junction-obstruction

Sounds positive they have said it is mild and can sometimes go away on its own. Fingers crossed for you x

That was a rather alarmist post to a mother already worried about her little baby. You’ve basically said to refuse any and all treatment as it’s all terrible and doom and gloom.

Adult/pregnancy related urology/nephrology care is not necessarily comparable to the types of pathology/clinical presentations that occur in paediatrics. An 11 week old baby is incredibly unlikely to have any renal calculi, and cysts would probably have been seen on a scan.

OP’s baby might have a small congenital malformation requiring a simple surgical fix early in life that never causes her another problem again and she is on the right path to having something like that identified and fixed, or it could be due to the infection.

Either way your post wasn’t helpful, and an 11 week old probably doesn’t need a catheter as a first and only treatment modality.

Hi OP. My son had this. They actual found it before he was born on an ultrasound. I was told his kidneys were dilated and he may be more prone to UTI's but not to be too worried. He had a scan after he was born at about 2 weeks old then every 3 months or so. At each ultrasound they either stayed the same or reduced which was a good sign. His last one was at 18 months and I recieved a letter from the peads to say it was now completely normal and this can happen in newborns but normally clears up within a year or two. He is now a happy healthy 22 month old. I hope that helps a little bit. I understand your worried I was the same

Hi OP. My son had this. They actually found it before he was born on an ultrasound. I was told his kidneys were dilated and he may be more prone to UTI's but not to be too worried. He had a scan after he was born at about 2 weeks old then every 3 months or so. At each ultrasound they either stayed the same or reduced which was a good sign. His last one was at 18 months and I recieved a letter from the peads to say it was now completely normal and this can happen in newborns but normally clears up within a year or two. He is now a happy healthy 22 month old. I hope that helps a little bit. I understand your worried I was the same

She's got it in both kidneys and they saw it after the UTI, I'm relieved knowing children can have it but go away. My baby was born after 3 miscarriages 2 years of trying and a whole load of drips and drugs given to me during pregnancy as a fertility treatment to keep the pregnancy safe so she's a very very precious baby for me. As would any baby be for any mother. They have said it's very very mild and they want scans to see the cause and find a cure. She's been given daily antibiotics to prevent further infection but I think as a mother I'm just thinking worse case scenario. I'd love o know if there's any other mothers whos children had this and came out positive on the other side. Plus is this life threatening ???

It's not life threatening, if it's mild try to meet with a urologist to talk about some observation of it over a time period of a year and see what happens

I am saying to have a hands off approach as intervention makes things so much worse ime which is also valid to share
My nature is never to scaremonger it's really clear I'm not like that if you look at all of my posts

I am wondering if it will just settle as she grows, if there isn't an infection and there isn't an obstruction and she isn't suffering and her bloods are fine then leave her be and observe, I know that a lot of urologists in my experience can be very interventional causing more discomfort then good

From my personal experience I have only ever known people to suffer with stents or nephrostomys

Might be worth signing up to Bennenden to have diagnostics done by them. It's about £10 a month and they are an amazing setup, I've never used them but my husband has once. They are really worth it and reimburse for cost of private consultations if the nhs will take longer then around 6 weeks I think?

Sorry if I frightened you what I meant was to leave her be. Also to try laying her on her other side if she is uncomfortable to help the kidney to drain

My kidneys went back to normal after I had all of my children and it's known that my hydronephrosis was due to hormones, maybe it's also related to hers after she has just been born. I've heard of girls having breast milk / bleeding and it's just a carry over of the hormones from pregnancy

Congratulations on the birth of your daughter, what a journey you have been through. You have navigated so many trying times and to want the best outcome for your child and caring so much makes you a lovely mom.

Here if you want to talk but as I've said it is my experience of my hydronephrosis, it didn't do me any long term damage like scarring and my kidneys were 16cm at one point, I'm 5ft 1 for reference

X

My son has come out the other side and is now absolutely fine. Yes like I said the consultant told me in most cases it clears up. I hope this is the case for your precious bundle as well. Congratulations on your baby x