Worth seeing endocrinologist

[loveisagirlnameddaisy]

My 12yo DD is 6'1", so completely off the growth charts. She has always been tall, was seen by an endocrinologist when she was 5, had tests and was dismissed from the clinic.

Started periods a year ago, she'll be 13 in Oct. GP surgery useless at getting back to me, although I'm waiting on an e-consult form asking for advice and guidance (I understand the GP can email consultants asking for guidance to cut down on referrals).

Considering seeing a private endo, £400 for first consultation. Just not sure what to do. Not sure what I'm asking for on here as I know no one knows for sure! Just worried (that she hasn't stopped growing) and it helps to tell people.

Marfans ?
Family history?

No Marfans. Nothing detected during tests when she was little other than slightly elevated IGF-1 but they did a glucose test and she suppressed her growth hormone.

Parents are 5'10" and 6'4" so clearly we were expecting our kids to be tall but it's just unnerved me how much taller than me she has got and is still only 12.5

Thanks for replying by the way

I'm more familiar with the opposite problem but I'm pretty sure an endo would be able to do/order a bone age xray of your daughter's wrist/hand to assess how near she was to finishing growing. Would also assess tanner stage of puberty again to see how much growing time left. I think (not sure) that girls often finish growing about a year/year and a half after they start their periods so she may not have much more to go.

She had a bone scan when she was seen a few years ago along with blood tests. Are bone scans definitive or can things change with age, do you know?

I'm very much hoping that her last growth spurt which took her from my height to 6'1" is her last.

Not heard of tanner stage, will take a look, thank you

You are both tall though
Maybe she just grew early?
Is she concerned?

Bone age xrays do change. They measure the "growing room" left between the growth plates.

In certain conditions, kids can have either an advanced bone age (bone age "older" than their actual age, meaning they have less growing time), or delayed bone age.

In IUGR children (those born small for their gestational age), bone age can start off in early childhood being delayed, but then run ahead in puberty. My child has a bone age xray at least every 2 years, once a year in puberty. Bone age used to be delayed and is now on a par with actual age.

She definitely grew early - was consistently off the charts from birth hence us being referred when she 4 to an endocrinologist. They didn't find anything (or missed something if it was there). She has grown like a weed ever since.

She's not worried per se, hates being so much taller than everyone else and gets comments all the time from kids at school (first year of secondary).

She could be fully grown at nearly 13, I had several "tall" friends from primary who stopped by 13 whereas I carried onto 16, both my DD's carried on to 17, but neither started their periods to 16.

Ive also read that girls stop growing a year or so after they start their periods. I was pretty much full grown by 13. You could monitor it over next 6 months to see if it slows. Keep chasing the GP though if you’re concerned.

Thanks all. I'm going to push the GP to at least check with a consultant as I understand they can now do rather than just refer.

I am very much hoping that a year after her periods starting and at 6'1", this is now it!