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Original poster

bronchiectasis

9 replies

Shellyxx · 27/05/2022 14:46

My daughter (4) was in hospital 13 weeks ago, with adinovirus & chest infection and on oxygen for the week.

Her X-ray showed a haze on the lung.

12 weeks on she was still coughing ect so she had another X-ray which showes changes and infection/inflammation in the bronchial tubes.

Bloods and sweat test done (awaiting results)

Now I've received an email saying she may have bronchiectasis

Really concerned now because my research says usually older people have this.

I phoned back and she said 'it's what they think. It's not definite yet'

That doesn't help me and my anxiety.

Any thoughts/views/experiences?

OP posts:
CherryRipe1 · 27/05/2022 15:24

Sorry to hear about your DD. My partner has bronchiectasis, he was diagnosed at 40 but the doctors think it was triggered by childhood pneumonia. Hopefully your DD's possible diagnosis turns out not to be this but my DP is in his 70's and tears about like anything! He has COPD and asthma too! He does lung exercises & takes preventative inhalers. Also plays sax which helps alot. All the best OP, fingers crossed.

ByTheSea · 27/05/2022 15:40

My DH is 58 and developed this with nonstop horrific coughing after having COVID in early 2020, he was finally diagnosed almost a year ago and has been so much better since being on the meds.

ByTheSea · 27/05/2022 15:40

Meant to add that DH has had asthma for eons

resuwen · 27/05/2022 15:49

Hi, don't panic! I was where you are now four years ago and remember reading all sorts of terrifying things on the internet. My son (17) has bronchiectasis, we're not sure what caused it. He had moderately severe asthma and frequent chest infections when small, we found out about the bronchiectasis when he had an infection that wouldn't shift. He was taken into hospital and given a course of IV antibiotics and was taught how to use a physio device to clear the mucus from his chest. He had a year or two of frequent antibiotics while the consultant did lots of investigations about his triggers and different medications. He is now on Fexofenadine to manage his allergies and his chest is actually better than it has ever been - he needs no inhalers and rarely needs to do his physio. No impairment to his quality of life whatsoever. What it does mean is that he is susceptible to chest infections and if he gets one, needs strong antibiotics straight away. Good luck!

Original poster
Shellyxx · 27/05/2022 15:56

resuwen · 27/05/2022 15:49

Hi, don't panic! I was where you are now four years ago and remember reading all sorts of terrifying things on the internet. My son (17) has bronchiectasis, we're not sure what caused it. He had moderately severe asthma and frequent chest infections when small, we found out about the bronchiectasis when he had an infection that wouldn't shift. He was taken into hospital and given a course of IV antibiotics and was taught how to use a physio device to clear the mucus from his chest. He had a year or two of frequent antibiotics while the consultant did lots of investigations about his triggers and different medications. He is now on Fexofenadine to manage his allergies and his chest is actually better than it has ever been - he needs no inhalers and rarely needs to do his physio. No impairment to his quality of life whatsoever. What it does mean is that he is susceptible to chest infections and if he gets one, needs strong antibiotics straight away. Good luck!

Thank you for your reply! That's made me feel a lot better.
It's been a stressful couple of months, still not at the end of the results yet but what I read online scared me into panic mode! Xx

OP posts:
HoppingPavlova · 27/05/2022 15:57

Yep, one of mine has this. Diagnosed as a child along with many other issues due to congenital problems. While many infections and hospitalisations when young, once they got onto the hypersaline combined with self-chest physio it was all manageable and it’s not really an issue most of the time. Obviously they are still prone to chest infections and you really have to stamp on them quickly, but not common any more.

Original poster
Shellyxx · 27/05/2022 15:57

ByTheSea · 27/05/2022 15:40

My DH is 58 and developed this with nonstop horrific coughing after having COVID in early 2020, he was finally diagnosed almost a year ago and has been so much better since being on the meds.

That's good, so he's on medication for life? Xx

OP posts:
Original poster
Shellyxx · 27/05/2022 15:57

CherryRipe1 · 27/05/2022 15:24

Sorry to hear about your DD. My partner has bronchiectasis, he was diagnosed at 40 but the doctors think it was triggered by childhood pneumonia. Hopefully your DD's possible diagnosis turns out not to be this but my DP is in his 70's and tears about like anything! He has COPD and asthma too! He does lung exercises & takes preventative inhalers. Also plays sax which helps alot. All the best OP, fingers crossed.

Thanks for the reply! That's good to hear!! Xx

OP posts:
Discodreams · 28/07/2022 12:10

Hi @Shellyxx hows your dd now? Did you get all the results back?
my 6yr old is also under investigation for Bronchiectasis, possibly as a result of having covid. Like you I went to Google and all the info is for older adults (40+) and it’s all rather scary. He has his CT scan on Saturday and bloods next week, it all seems to be rushed through for us which worries me more than anything else

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