So worried. DD3 throwing up every few weeks, always a Fri or Sat

[Samiamnot]

Dd is 3, 4 next month. She first vomited on 4th March, in her sleep. No other symptoms and was just once. She was fine after.

Same again two weeks later.

Same again one week later but vomited three times through the night.

Same again 2 weeks later (yesterday). Slightly different as we had been driving to our holiday in the morning. She vomited after eating dinner (sausage and chips but only at the saisage) which was a good few hours after we'd gotten out of the car. Fine after.

She's vomitted again today. Once in the car on a winding road. Wasnt herself for for rest of the day. And again after being out of the car for 2 hours, right before eating dinner (a much healthier, less greasy dinner of cucumber, tomatoes, dips, cous cous and fresh fruit). She was back to normal straight after but not been herself and has just taken herself to bed and fallen straight to sleep, which is totally unheard of. She had a v late nap in the car on the way home so was up about an hour later than her normal bedtime.

ANY ideas what going on? Will onbs make a docs appointment on Tuesday but I'm scratching my head, completely clueless. My DM said maybe a long covid symptom. The only thing Dr. Google suggests is cyclical vomiting syndrome but it doesn't sound like that as its only 1-2 vomits at a time, not hours.

Actually no, its not mild. The NHS website is clear that its not a couple of vomits and then the child is fine (as in OPs post) its relentless vomiting lasting hours, and often needing hospital. DS is classic and is almost comotose with the effects. He vomits around 8 times an hour for up to 12 hours. The NHS website says its a rare condition. Presumably your DD had an endoscopy, stomach emptying studies, blood tests, and an MRI scan? I'm not saying your DD didn't have CVS as she now has migraines, but its rarely classified as mild. Just hoping DS grows into migraines as they are much easier to treat.

@itsmeagainlol the majority of medical condition have degrees of severity. Your child will only have had an endoscopy as they wanted to rule out other conditions which can cause similar signs and symptoms.
Some people are very badly affected and others less so. but it's considered a functional diagnosis, so you have to rule out other conditions before the diagnosis can be given.
In recent scientific papers, it's been described as under-reported, but also found in adults too and it's very person specific - like migraines, triggers can be multi-factorial.

I'm not a paed gastro, but I am a HCP with a research based masters. If you'd like to read up on it, most of the abstracts here are fairly readable and will back up what I've said above.

pubmed.ncbi.nlm.nih.gov/29556858/

I don't know if the OP's child does have CVS, but the signs and symptoms are very similar to my daughters.

Regardless, OP you need to get it investigated. CVS is a diagnosis of elimination as there is no test for it, especially as there may be multiple other causes for intermittant vomiting.

Hi, I just want to chime in here.. @underneaththeash you are 100% correct in what you said, in fact I cannot pick out a single bit and say no that’s wrong!

i became sick at 11/12 years old and had to go through that process of elimination you spoke of.. I’m 30 next month and believe me at this point I have seen it all now!

My episodes always last 5 days and at worst reoccurs every 4 days.. I have had episodes that are literally just a few vomits before it breaks and will maybe come back a few days later.. this wouldn’t be as serious as my 5 day episodes and I can still keep up with life to a certain degree…

like I said the majority of my episodes are 5 days long causing me to need to be hospitalised and get sedated with some fluids until it finally breaks (later on I was given rectal Diazipam and haven’t needed hospital admission).

@itsmeagainlol not everyone has to follow a specific amount of sickness especially not severe sickness just to be diagnosed with CVS! Back when I was diagnosed in the early 2000s the NHS website didn’t even have CVS on it! They didn’t know what it was and all of my research and even my doctors research had to come from America as they are the ones to study into it…

The CVSA (American website) was THE first to even put information out on the condition and through that site I have met A LOT of sufferers, both young and old. Some of them have episodes similar to the OP, many have episodes like @underneaththeash’s daughter and like they said, many of them outgrow the condition and suffer with migraines afterwards.

Again as stated it is no longer thought to be rare, or a childhood illness as many adults also suffer… I am one of the many children that didn’t outgrow CVS as I reached Adulthood. I’m 30 this year and only the past year or two have I stopped being sick now.. not sure if I have finally outgrown it or if I’m in remission yet again but I have been through this for the majority of my life know and have seen MANY different sufferers now to know there is no “classical” CVS… perhaps when it was a lesser known condition but not in this day and age!

@Samiamnot I would recommend getting your daughter a Gastroenterologist or a Neurologist (CVS can be treated by both since it is not a gut issue it’s a brain issue but usually pushed into the Gastro category). Check out www.cvsaonline.org/ they can help find you a Specialist in the field even in the U.K. In the resources section you will find a message board where you can search everyone’s questions and experiences and you can see for yourself all the different sufferers and how mild, moderate and severe it can be. there is also a plethora of information and resources that can be so beneficial it’s unreal!

best of luck