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13 month old needing a hearing aid - feeling sad

5 replies

AlicethroughtheSpookingGlass · 09/04/2022 20:40

My 13 month old was born with a cleft lip and palate which have now both been corrected. As part of his treatment he has regular hearing tests and we always knew it was likely he'd need grommets or a hearing aid in the future but I just wasn't expecting to be told at his test yesterday that he now needs to wear a bone conduction hearing aid at all times when he's awake.

I know it's brilliant they've picked it up early, and it's so important for his speech and language, but I just feel so incredibly sad that we've just got through surgery and now he has this to contend with. I think I also feel so sad that for the first 5 months of his life he looked a bit different to 'normal' babies and now he has this very visible headband he'll look different again and people will notice that before his gorgeous smile (he is a very very smiley baby).

Has anyone else had this happen and is it something you do get used to? He's obviously also not a fan of wearing his headband either so he only wore it for maybe 3 or 4 hours today but I don't know if that's ok to start with; my appointment was quite rushed so I didn't feel like the audiologist gave me any advice, although she said she was referring us to somewhere for support and advice.

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RandomMess · 09/04/2022 20:50
Thanks

It's sad for you that you didn't get the babyhood without extra worries that we all assume we are going to have.

Hopefully he'll get used to the headband. So much of hearing is neurological not just physical so it really is good that they have intervened so early.

It is ok to be disappointed that things are they way they are. Hopefully you will start to get lots of giggles to go along with his gorgeous smiles.

My DD had an inverted hearing curve and it was a long hard slog to get it sorted privately but we got there in the end.

outofmydepthh · 16/04/2022 17:46

I have two deaf children, one is turning three and the other is six months old. I really recommend you get in touch with the national deaf children society, there are loads of parents in this boat and it's a great support system. There are also a lot of cleft parents on the deaf forums online.

It's part of your son, part of his journey, and part of his deaf identity. Embrace his hearing aid and no doubt, in time (like all things with toddlers) he will be used to it.

I guarantee that in the foreseeable future, you'll look back and wonder why you worried so much- i speak from experience DaffodilDaffodil

Longcovid21 · 16/04/2022 18:55

My son wears hearing aids. It is part of his identity now. You will get much further if you embrace it early on rather than fight it. Even celebrate the differences if you can. You should be assigned support in your local area. Good luck

fossilsmorefossils · 16/04/2022 20:09

I get it. It's hard. We all want our babies to have a perfect life without any extra obstacles to overcome. Of course you'll both get used to it but it's totally normal to feel a bit sad while you're processing it.

karen983 · 29/06/2022 07:16

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