Acquired hypothyroidism in 8 year old

[Anyfeckinusername]

I got her diagnosis a week ago.

My DD had fallen in height from 75 percentile to 8. She was blood tested a year ago as I was concerned about her lack of growth and was being told it was due to steroid inhalers for asthma, but they went ahead and tested her, however the hospital failed to act on the results, it just fell through the cracks. I found out December 2021 when I asked at a clinic appointment for something else. Cue quick referral to endocrinology, more blood tests and the diagnosis.

So parking the fact I am livid her treatment could have started a year ago, had anyone ent experience of this?

My son has congenital hypothyroidism so I know it quite well in terms of the development of babies and the critical developments until age 3, he was very strictly monitored and his levels controlled. Now my DD but because of hashimoto and I know next to nothing about what it means at her stage of development.

We are waiting on a bone age scan result also.

Any stories of catch up growth, successfully hitting puberty really appreciated!

Hi there

My son is 13 and growth is slow / not started puberty. He has borderline over active thyroid .. no diagnosis as yet (it's not autoimmune) however, from my frantic googling and paranoia over his height /growth I am quite sure your daughter and my son are still young enough to catch up.

Has she started treatment?

Hi remmy, thanks for replying.

Yes she started treatment the day she was blood tested. The doctor phoned me that night to tell me the results. I had levo here because my son is already on it.

It’s a worry isn’t it. I’m sorry to hear you are also trying to figure this out for your son. So is he over range? Are you being seen by an endocrinologist? Was it his slower growth that prompted the thyroid checks? Sorry for all the questions! The poor pet.

I know my issue with them forgetting from on the first round of bloods is separate and I can’t change it but I’m absolutely furious about it. No apology from the two consultants who forgot it. When I queried the results in clinic and she looked them up on her computer her face just fell. It was obviously a total oversight.

I know it can be well managed when it’s caught in time - my son is testament to that but my daughter hasn’t been caught as early as she could.

It’s the same Endo team now for my dd but I don’t know much about it at all. She’s back in clinic for another blood test in three weeks to see if her levels are improving from the meds.

Hi - no the abnormal results were found when having blood tests for something unrelated, they are on the lowest end of normal and now referred to an endocrinologist. Prior to this he was seeing a very experienced private doctor who doesn't seem too concerned but we want it all checked to make sure that it will not effect growth etc.