Wide space eyes

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Hi my daughter is 11 months old, today we had an appointment at alder hey to check out a lump she had on her head since birth it was the crainiofacial consultant we seen he told us the lump was fine and was probably a pool of blood from forceps but it was nothing to worry about, but then said to me that my daughter has wide space eyes, nobody has ever mentioned this to me but he said I have them to he said it could be that she has them from me or there could be a genetic reason behind it an that he can refer me for genetic testing to check if there is anything in the back ground. I am now obviously worrying a lot googling stuff and just wondering if anyone has ever been told this and turned out to be nothing, my daughter is healthy and is reaching all her milestones she's perfectly fine, just this has worried me a lot x

My dc has the same skin fold at the eyes and wide set eyes. So does DH and DMIL.
Everyone tells me that DC has beautiful eyes. They stop me on the street to tell me - so I wouldn’t worry about it.
Sure she’s a cutie

I have wide space eyes. When I get measured up for glasses, opticians often comment that my pupillary distance falls into the male range. It's never been a problem though and nobody has suggested that I have genetic testing.

Hi OP, your daughter looks gorgeous, congratulations.

The daughter of A close friend of mine was advised to go for genetic testing age 2 due to a paediatrician noticing some slightly unusual facial characteristics. My friend was so glad she did go for it, because it turns out her daughter has a rare genetic disorder, which is also linked to lots of other unseen physical anomalies. So for example, a heart murmur. My friend was obviously very overwhelmed by this news, but she felt grateful that it had been picked up so young as it meant the health service has been fully on it and they don't leave anything to chance.

I know this is probably not what you want to hear, but I would personally advise you to go for it and grab the genetic testing with both hands. Most likely she simply has beautiful eyes and no genetic condition. But if by chance she does have one, you and she will be miles better for knowing.

Good luck with it all

Reminds me of when I took my oldest to a specialist because of a skin tag beside her ear and he put in the report she had moderate telecanthus. Of course I googled it and worried myself silly about it.

Finally we got an appointment with a geneticist he did some tests and there was nothing wrong.
Shes 10 now and as soon as her nasal bridge began to get bigger her eyes seemed to be closer together, its just the epicanthal folds giving the illusion of further spaces eyes.

I wouldn't worry too much about it. How is your daughter otherwise? Meeting milestones?

Thank you for the comments the other concern I had was her two pinkys bend inward only slightly doesn't affect her hands but I thought nothing of it until today she's meeting all milestones just a tiny bit behind on gross motor she can't go from sitting to standing but the health visitor said she isn't worried about that because she is trying to pull herself up she said that will come in time x

Doesn’t hurt to have more information from testing but try not to worry in the meantime.
Jackie Kennedy had wide spaced eyes.
My pinkies bend inward quite a lot, & I work in a professional role for what it’s worth.

She's absolutely beautiful 😍 I think @joobleydoo's advice is spot-on; I'd definitely take the opportunity, if a consultant has picked up on it, to do the genetic checks, so that you're well equipped if there is anything. But it may be nothing.

The pinkies can again be indicative of stuff, but also might be nothing at all.

Sending you an un-MN hug - it's actually really good that the consultant picked it up, but it must feel like a big worry for you right now x

My sons eyes are wide set and he’s absolutely beautiful - easily his best feature.

Your daughter is lovely Don’t worry!

Do go for the genetic testing. It’s a great opportunity to settle your fears now that the question has been raised. Almost certainly she’s just fine but there could be a slight anomaly that otherwise wouldn’t be picked up. Just a swab so not invasive or upsetting for your DD

I'd definitely go. I've got a friend and a family member respectively whose children were born with a couple of markers, including wide set eyes. Both happen to have genetic conditions and early diagnosis has meant extra support and the ability to anticipate more hidden consequences.

Both children are thriving and will continue to do so.

It may be nothing at all.

@joobleydoo if you don't mind me asking what genetic condition do your friends children have xx

@ShowOfHands if you don't mind me asking what was the genetic condition is it anything that affects them day to day life xx

She’s gorgeous! We were offered genetic testing with both DC because they were thought to have dysmorphic features at birth. Both came out clear, it’s just the way our babies look it seems…

It was nice to have the reassurance from the testing though so why not go ahead just in case and for reassurance.

I'm not sure telling you what their actual diagnoses are will help because you'll Google and find the worse case scenarios, which don't describe the children I know at all. One, for example, has a genetic condition which comes in 40 different classifications and even if you have one type, it doesn't mean you have the same presentation as a child with the same type. There's a vast spectrum even within the same condition. There's also not much to tell iyswim. Their conditions are a small part of who they are. I could tell you a lot about the funny things they say and do and the music they like and their favourite colours and films and you'd know far more about them.

Yes their conditions do affect their day to day life but this isn't a bad thing necessarily. We are all affected by myriad influences from our parents' income to our mental health, accidents and other diagnoses and on and on. I meant what I said when I told you they were thriving. They really are.

I know a few children with genetic diagnoses, some prenatal, some v late in childhood and those in between and the common factor for all parents is that they had to walk their own path. None of them found that the textbook definition was quite right.

I know why you want to know and I would be the same because I'd be worrying and would need to research. But there's nothing to research iyswim. Your DD has no diagnosis and so far, she is healthy and happy so that isn't about to change overnight. Just get the tests done and you may find that closes the chapter.

@ShowOfHands thank you! And did your friends/family always know something was different when they were baby's did it always affect there life before they had the testing done or did they only start to notice things after the testing? X

My 6 year old has go to have genetic testing he's pediatric said he's got wide space between eyes low set ears and rounded jaw I did not notice untill he's pediatric mentioned it

Hello, we had a similar situation yesterday. Doc said they find our 4month old baby to have wide set eyes and we got her bloods drawn for genetic testing.

Anything you discovered from your tests? We are so so nervous...

@Anaisha24 no the results was normal no genetics detected but thay can only test for some not all apparently as there's 100s but he's now been diagnosed with autism ADHD and touretts he's 8 aww I no it's hard but try not to worry I have friends who have children with few different genetic disorders