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Is this normal? Would you be worried about leukaemia?

26 replies

nopun · 06/11/2021 21:06

My almost 2 year old has been off colour for months. He's had a string of colds, tummy bugs, chest infections etc since the summer - pretty much a high temperature for the past 8 weeks, with the occasional day or two break. To top it all, a few weeks ago he was down with a fever and bad cough, and then got an awful rash all over his body. After a week of this he tested positive for Covid. The Covid test was 10 days ago, and he's still got a temperature that comes and goes, ear ache, sinus infection, weird nappy rash etc, is clingy as hell, and is still testing positive on the LFT.

I have an older kid and know this is the age when they get everything. But he only goes to a childminder with one other child (not nursery yet like the older one did), and this consistent series of illnesses, with him never really recovering in between, seems really extreme.

I've been worrying about leukaemia but don't know whether I'm getting myself into a panic over nothing. Some things seem to fit - the never ending series of infections, the fact that he hasn't put on weight in ages and is about to fall off the chart (but this could simply be because he's always off food when he's unwell?), he's really skinny but has what looks to me like an exaggeratedly large toddler belly. I haven't noticed any unusual bruises, and he's quite pale but not worryingly so.

Should I be worried it's something serious, or just a bad run of the toddler bugs? My GP already thinks I'm an over reacting trouble maker - I'd need some ammunition. Any ideas or words of advice?

OP posts:
Jaybird43 · 17/11/2022 10:57

@nopun how is your DS doing now? I've just looked at the blood results; with coeliac disease (both my DC have it) the medics have to do a request for it, otherwise it won't be screened. You're looking for the Tissue Transglutaminase IgA antibody (tTG-IgA), plus an IgA antibody; my DD was so positive for coeliac disease, her levels were well over 250 (greater than 10 x the normal limit). She was poorly with headaches, swollen tummy (that I can now actually see when I look back on photos - I just thought she had a chubby tummy), mucus-y poos, severe heartburn etc. As soon as she was diagnosed and was gluten free, the symptoms stopped.

My DS had to get tested also (he had NO symptoms whatsoever but because DD is coeliac, the immediate family needs to be tested), and his levels were 43. Because they were only 3 x the normal limit, he had to have an OGD under sedation at Bristol Children's hospital.

I really hope your DS is better and you have answers as to why he was so unwell x

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