My DGD is five years old.
She appears to have a clumsy gait. She walks quite stiffly. She looks rather odd when running, skipping and scooter-ing.
I know when I have taken her to school, some parents snigger and point this out to others in their clique.
She was 18 months old when she started walking - she never crawled (bum shuffler). Since she was 2 yrs she has walked with a pronounced limp every now and again. She saw a paediatrician when she was 3 yrs - they suggested ibuprofen and she saw a physio twice. She was discharged.
This week a PE teacher (one who visits a number of schools) told her teacher she was walking stiffly/limping and she was excused from the afternoon session (they go to school in PE kit and have a full day of PE).
Her teacher rang mum to tell her this.
My DGD stays overnight with us on Friday - I asked if her legs are hurting. She said not as much as usual - she said sometimes she wakes up crying because her legs hurt so much and mummy gives her ibuprofen. She then said that her feet buzz when she's walking and it hurts.
This is new to mum and me. She's not complained of this before.
What could it be?
So as not to drip-feed. Both my daughters and I have EDS in different forms (hypermobile and classic).
Do we ask to be re-referred back to the paediatrician or accept she's one of us (without diagnosis) and just get on with it as we all did? (My daughters were diagnosed mid twenties and I've just been diagnosed mid fifties.)
When I took my daughters to see the GPs as children we were fobbed off with 'growing pains' mainly. I would hate for this frustrating cycle to begin again.
We are all wary of being treated like we are wasting NHS time as it took a very long time to finally find out our own condition.