DS1 is almost 13.
He has mitral and aortic regurgitation and one of the arteries connecting to his heart, twists around the heart the wrong way.
This was all only discovered over several appointments.
Every time he sees the cardiologist there's something new wrong with his heart or his current conditions have worsened.
He has an appointment at quarter to 4 and honestly I'm not looking forward to it. I'm dreading the news that there's something else wrong or that his heart is worse than it was.
Hes already had a heart attack when he was 11 (beginning of lockdown. It was terrifying).
I'm so scared for him.
But he's completely unfazed by it all. He takes it in his stride, loves to play rugby, basketball and football, he was laughing and joking during his heart attack. He's just always so upbeat and positive. Hes a joker and is devastated that he's not allowed on certain roller coasters and rides as he's a thrill seeker!
Can I have a hand hold? I'm shitting it to be Frank, and I have to put on a brave face for my son