Any doctor or medical professionals please read

[mummybear2918]

I took my daughter to the doctors (Gp) last week for a rash she 2.5 years. They did a check of everything but the rash was fine but the doctor said she hears a murmur so she is being referred to childrens doctor to get it checked properly. The doctor said she could hardly hear it but check 2 more times then put the referal in, so then few days ago we went to doctors due to coughing but yet all good again but that doctor could hear the murmur very clearly...... So my question why is this only being picked up now she 2.5 years and been to doctors many times and many have listened to her heart and said nothing.. Could it be something more I'm freaking out cause heart conditions run in my family. And the odd time she can go blue on the lips. Was giving her a little tickle yesterday and they went blue

Please give me advice

If the blue lips is new I would be ringing 111 for a check up tonight.

I mentioned to the doctors the other day about the blue lips but she didn't say much but first it's happened when I've tickled her

That must be really scary for you @mummybear2918. The good news is that she has been referred to the paediatricians now and can be properly checked over for anything out of the ordinary.

As for why it hasn’t been picked up until now, it’s hard for anyone here to say as they’ve never met or assessed your little girl, or read her medical notes. It could be that it’s faint and hard to hear, you said it took the GP 3 goes to hear it properly and so it wasn’t found, or maybe it wasn’t present before at all, or maybe some other reason altogether. No one here can tell you for sure.

As for the blue lips, I assume you spoke to the GP about that? Is it mostly when she does strenuous or exciting things like tickling or running? I’d avoid any known triggers (things you’ve noticed happening or her doing before her lips go blue) until you’ve seen the specialist and had some advice and an assessment.

All the best to you

Thank you for replying
Yes the doctor hear it 1st time but check twice more to be certain.
The next doctor heard it straight away
She's full health just been getting sick easily last few months 2 throat infection tummy bug and coughs many times in the last 3 months

Hope your dd is OK.
Not completely the same but when my ds was born he was whisked away to nicu, he was there for 8 days.. No one heard a heart mumur and he was seen by multiple consultants, drs and nurses. He was then discharged with follow up at baby clinic with the nicu team every couple of weeks. One of the consultants there in his first visit to baby clinic heard a mumur and was referred. While waiting on the cardiology appointment ds saw several over drs in the meantime none of them heard the mumur even though we knew it was there. The one consultant we saw every few weeks could always hear it. I asked why he could but no one else did and he said that sometimes they are hard to hear on young children unless you know what your listening for.
Cardiology heard it on their first appointment with ds, echo etc all came back normal. After a couple of follow up appointments cardiology said it had gone and could no longer hear it and that it had resolved itself.
We were told that some people can have an innocent heart mumur that goes unnoticed well into adulthood. Fingers crossed its just an innocent mumur and your dd will outgrow it as she gets bigger

Thank you for your reply.
Im very glad to hear your little one was fine.
Fingers crossed that is the same road for us

I'd be very dogmatic about chasing it up tomorrow. My relative got a phone call from the hospital one day when her dd was a year old. She was told that a murmur was picked up on her 8 week check but nobody followed up on it.

They took their child to the hospital and within 48 hours she'd had surgery and was ready for discharge.

It was randomly picked up by a student looking at medical notes. She was and is absolutely fine, her ecg and other tests told a different story. Luckily the surgery to rectify things was done via her femoral artery, and was very quick.

I just wouldn't let them give you the runaround without proper tests and answers.

Oh my goodness that's crazy. Thank you for sharing. I hope that little one is doing well now.
Its bank holidays here in Northern Ireland until Wednesday but I'll definitely chase it up then

DS1 was unwell as a baby, just a minor viral thing, but GP heard a murmur and sent us to hospital who agreed but, once he was over the virus, it was not hearable. Next time he was ill, murmur was back and went again once better.
This happened for years but he did grow out of it and is now a healthy 6 foot tall, healthy adult

@mummybear2918 are you Belfast based?
Cardiology at the children's in the Royal were fantastic as that's who we saw. Do push for your gp to give you an urgent referral if your concerned.
Otherwise in the meantime I would take dd to A&E if she goes blue again and your worried.

Yeah @Smurf123 I'm not sure if will be there or ulster hospital.
I will do thank you

"Innocent" murmurs are very common in children - basically an extra noise heard due to the blood going a little faster through the heart when they are unwell. It isn't always heard when a child is well, so can come and go. If your child is 2 1/2 and has been generally well, then hopefully it is nothing. Children can sometimes scare their parents by going blue by breath holding when having a tantrum, or if she was being tickled, could have been holding her breath, but obviously if you are worried and she goes blue with no obvious reason, then seek medical attention.

I was 59 when a doctor first heard what he thought was a heart murmur. I had an echocardiogram and was declared fine.

The next time I had a doctor listen to my heart, maybe five or so years later, he heard what he thought was a murmur too. I told him about my earlier echocardiogram, and he seemed satisfied.

So, if mine could be missed for near on 60 years, I guess two years is ok.

At least it's been seen/ heard now, so you can get to a diagnosis.

I hope your little one is ok.

@mummybear2918

Oh my goodness that's crazy. Thank you for sharing. I hope that little one is doing well now. Its bank holidays here in Northern Ireland until Wednesday but I'll definitely chase it up then

She is absolutely fine, it was like a really odd 48 hours in their lives! She may have to have a second surgery as a teenager when she finishes growing. Other than that it's half a day of tests once a year.

If the heart murmur is new plus a rash then I think needs to be seen quickly to exclude rheumatic fever - most unlikely but still occurs.
Most likely the murmur is worse because she is unwell - when unwell heart beating faster and louder so murmurs more obvious.