HSP

[spaceghett0]

Hi

Does anyone have any experience of HSP please?

My DS (11) developed a non blanching rash 10 days ago which started fairly mildly but is getting worse and angrier looking by the day. He is well and has no other symptoms (apart from a broken arm a week previously which I assume is unrelated).

He's been seen by the nurse at our surgery who diagnosed him with HSP. They have taken bloods and he is sending in urine samples daily, all have come back fine.

I'm worried about his rash though, it looks redder every day and it's still spreading 10 days later. It covers his whole body now and is on his face and eyelids most recently.

Is this typical for HSP? From what I've read he would be expected to have abdominal pain or muscle aches, he doesn't. Also the rash is still spreading, is that normal? The original spots are still there too.

Thanks.

Hi, my daughter had this two years ago. She was quite a bit younger than your son but yes the rash spread to her face and from memory came in waves for quite a bit. She did have the classic random joint and yummy pain just as the rash started though. She was under the care of a local children’s ambulatory care service at a hospital and had checkups that were daily, weekly, fortnightly, monthly and so on for six months. At each check up they checked her urine, took blood pressure and examined her. We were told to look out for blood in urine and poo as they are most interested in the blood vessels in the kidneys and bowel being affected.
I know my daughter was younger but your sons treatment seems a little “light touch”. We were given a pre-existing protocol document that explained how the follow up would work and she definitely had bloods taken on the day she was diagnosed.
The hospital took it seriously, I would want more specialist care that the surgery.
I hope that helps and I hope your son makes a speedy recovery.

Yes it's definitely more light touch. He hasn't even seen a dr, just the nurse at the surgery. I'm going to ring them again Monday as his rash is just getting worse and worse. He's never had his blood pressure checked, I didn't know he should be

This is what the NICE guidelines say about follow up, in case you need to quote them. He should also have had his urine tested and BP when he was diagnosed.

"GPs are likely to be involved in monitoring for renal involvement, usually under written guidance from the secondary care specialist. Typical monitoring advice would be[3]:
For those with no proteinuria, blood pressure checking and urinalysis at days 7 and 14 and at 1, 3, 6 and 12 months.
For those with proteinuria, follow-up at days 7 and 14, monthly from 1-6 months and then at 12 months."

Thank you.

My son had HSP when he was younger, he unfortunately had complications and was vomiting blood and fresh blood in his poo, he ended up in ITU.