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Experiences of children/teenagers being diagnosed with an underactive thyroid

9 replies

SomeKindOfPlentiful · 10/06/2021 09:22

My DD is 15 and I want to rule out an underactive thyroid but don't know how to approach the GP without coming across as a paranoid mother.

If your child was diagnosed with an under active thyroid what was the trigger symptom which made you investigate further?

I might be clutching at straws but feel I would like it ruled out. DD is 15 and overweight in a family who are not. She eats what we eat - which is mostly food prepared from scratch - and doesn't have access to food outside of the home/school very often. She is an active girl. She doesn't seem to have reached the height that I thought she would based on being a long baby and always on the 75th centile. It would appear that her torso hasn't grown much. She is kind of 'slow' in her movements. Lethargic. This is probably more normal for 15 year olds but she has been like this for years. She has irregular heavy periods and dry (though not scaly) skin. I've read early puberty can be a sign or delayed puberty!?

I read that in teenagers, being overweight is not a symptom of an underactive thyroid. But it is more to do with not reaching full growth. I would say that is what my DD looks like. She periodically had those growth spurts where she would grow out and then grow taller and thin out. But she looks like she is missing the last 'upwards' growth spurt.

So, part of me thinks I am clutching at straws and another part of me thinks it would be awful if she has an underactive thyroid and I did not act on it. Would it be more obvious if this is the case or could it go undetected for years?

OP posts:
Are your children’s vaccines up to date?
SomeKindOfPlentiful · 12/06/2021 10:31

Bumping for any response

OP posts:
Iesugrist · 12/06/2021 17:42

Thyroid problems in teenagers (as in adults) can present in a bit more of a subtle way. If there is significant concern plus significant excess weight I suspect most GPs would be keen to exclude it alongside the usual working through of healthy food choices, activity levels, exploring the history a bit more for causes of obesity. So I would not consider that a wanted appointment from what you have described.

SomeKindOfPlentiful · 14/06/2021 12:43

Thank you for your response.

OP posts:
Iesugrist · 14/06/2021 16:01

You're welcome - just spotted a typo: wanted -> wasted that is to say make an appointment if it seems relevant to your needs!

Delphigirl · 14/06/2021 16:07

It is cheap and easy to add thyroid tests into a full blood count so there isn’t really any reason why they should not do so as part of an investigation. I have a child with congenital hypothyroidism and a lot of the symptoms you describe could be symptoms of hypothyroidism so I would think it is worth the blood test which will give a pretty definitive result one way or the other.

NightmareLoon · 14/06/2021 16:23

My friends kid has an underactive thyroid. They did blood tests, but they also did some x-rays as you can tell how much growing there is left to do by looking at the ends of the bones. (So the kid had a "bone age" well under their actual age.)

SomeKindOfPlentiful · 02/02/2022 12:36

I'm reigniting my post from last year. I had a phone consultation with a GP unknown to me who very reluctantly referred DD for blood tests to check for thyroid issues We didn't hear back from the surgery so I assumed they were within the normal level.

Then DD turned 16, and she was removed from my online health system and we got bogged down in trying to get control of her asthma medication - coordinating phone-call reviews with the asthma nurse who kept ringing her direct when she was at school in lessons.

But now I have read that what is deemed a normal level in England, isn't the same in other countries and I am still left wondering.

Other symptoms she has is the brain fog/mood swings, regularly mentioning being cold, and the most worrying is realising that her weight gain is more like inflammation. Her face, hands, feet and legs are puffy. The skin is smooth and and baby-like. There is little defined shape of her face. You can't make out cheek bones or a chin, it's just round and puffy. And other days less so. Is this what weight gain looks like with hypothyroidism or could it point to something else going on?

OP posts:
OutwiththeOutCrowd · 02/02/2022 12:53

Would you consider paying to have a test kit to check for an under or over active thyroid sent out to you at home?

Something like this for around £30:

monitormyhealth.org.uk/?gclid=Cj0KCQiA9OiPBhCOARIsAI0y71Bx3vW7gXUToEEIvJhQitjtj6txAbcHX84UIMWsKjCI75ZbV6vLnlgaAuGwEALw_wcB#viewOurTests

In the current climate, it can be difficult to get the attention of a doctor!

TooManyPJs · 02/02/2022 13:16

What were her thyroid results with ranges? (You are entitle to this information so don't ge fobbed off). Did they just test TSH? That isn't enough to rule out some types of hypothyroidism. You really need TSH, FT4 and FT3 done. You are unlikely to get FT3 done on the NHS as labs often refuse to test even when requested unless TSH is suppressed.

Can you afford a private test? I get this one regularly from Thriva. It also covers some key vitamins - deficiencies in these often go alongside thyroid problems or the symptoms are similar to hypothyroidism.

Actually the Thriva one has been bumped up in price by £20 since I ordered it a couple of weeks ago!

Have a look here for some other similar tests which also comes with a discount:

thyroiduk.org/help-and-support/private-thyroid-tests-in-the-uk/

You can find out more about thyroid tests and what they mean here:

thyroiduk.org/thyroid-function-tests/

For more advice I'd recommend posting on the Thyroid U.K. forum on Health Unlocked:

healthunlocked.com/thyroiduk

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