Shaking/twitching/tremors in 13 year old

[ArianaDumbledore]

DS is 13. He was diagnosed with Chronic Fatigue Syndrome about 2 years ago. Would be classified as mild but it's peaks and troughs.

Complained a lot of joint ans muscles pains, developed near constant shakes in hands (something I observed and he hadn't mentioned)
GP Referred back to paediatrician who was pretty dismissive of everything tbh. Pretty much Said he didn't believe in Chronic Fatigue Syndrome and DS is probably just not as fit as other children his age.
But paediatrician noted DS eyes twitching when doing some neuro tests.

Blood tests clear, paediatrician is going to speak to neurology but doesn't anticipate they'll have anything to add.

Had a phone conversation after test results back. Paediatrician said the shaking etc is probably psychological. Might be able to refer to the Chronic Fatigue Syndrome clinic at UCL. But again mentioned the controversial nature of a CFS dx.

I just feel a bit like we're just going around in circles. School aren't happy with his attendance and fluctuating ability. (terrible brain fog at times).
Paediatrician satisfied there's nothing really wrong so it's low priority now (,which I understand). DS looks and feels like crap, we try and chivvy etc but then I wonder if that's the wrong approach too.

Anyone had similar or words of wisdom appreciated

SN - Special Needs, I have 2 other children diagnosed ASD

Fii - Fabricated and induced Illnesses - when a professional believes you are lying or causing the symptoms

DS2 is the one with the shaking

@ArianaDumbledore you poor thing them making out it’s not real! As if your child shakes on purpose. They are a nightmare xx

Hi all. Just saying hi because my son, aged 10, has just been diagnosed with CFS. Been quite difficult to take on board. I couldn't see a Mumsnet thread for CFS specifically. Poor DS is feeling quite unwell. Usually such an active bouncy child... 2 or 3 month waiting list for the child CFS clinic in my area (Bristol). What did you find helped with your kids? Thanks. x

I started with internal tremors following a bad bout of COVID. No one knows why. If anyone suggested they were psychosomatic I'd probably punch them tbh. It's only been 2 years and I'm already sick of medics telling me all the stuff that they cant explain is in my head (this is happening less the more research on COVID they do tbf). I could imagine much more interesting things than this if I were faking illness.

And when they can finally explain the burning sensation I'm going to track down the revolting gp that first dismissed me and make him eat the research paper. Git.