Epilepsy drop seizures (4 yr old)

[EpiChild]

NC for this. Please let me know if I’ve put it in the wrong place or if there is a better section.

DD has a disability where it is common for epilepsy to develop. She used to have myoclonic jerks but due to the nature was not epilepsy. She now has started having drop seizures so they have diagnosed epilepsy. DD is about to start a 3rd drug because the first 2 did not work. Apparently if meds don’t work then surgery (similar to pacemaker?!) would be offered. I’m terrified for DD, she’s only 4 for god sake. Obviously I hope this new medication will work but wondering if anyone has any experience with this type of situation

Are they talking about a vns? They seem to have great outcomes

My brother who is older than your daughter he’s 28 has had that surgery. It was very good for him he is getting a lot fits. He has to go for regular check ups where they turn it up I think it’s every month. But it’s doing a great job. I can’t imagine how you feel it must be awful going through this. I also have epilepsy and I’ve finally found a good combination of medication so this could be the one that works for you daughter. I know you must be scared it’s such a lot for a young child to go through, but if it does come to it these surgeries do have a very good outcome. Good luck

Thank you for your comments.
Yes it’s a VNS. I worry because she is so young and we have to make the best decision for her and surgery is scary. If she was older at least she could tell us what she wants. I also don’t know anyone else with this type of epilepsy so we feel ‘blind’ without hearing experiences from other people

Name change fail oh well