Hypermobility

[Tcr1987]

Hi

My son had an appointment with a paediatrician today as we’re concerned about his gross motor skills - mainly waddling walk, lots of falls, no jumping and difficulty walking up stairs. He’s 2. She said he has very ‘floppy’ and hyper mobile legs. His calves are also a bit big so she’s referred him for a CK test to rule out muscular dystrophy.

Anyone else have any similar experience and happy outcome they could share?

Thanks

You can have hypermobility and low tone without it being a dystrophy.

www.hypermobility.org/pages/category/children-and-young-people/tag/child

But big calves are concerning sign. Await tests and if they are concerning look up www.musculardystrophyuk.org/ and call their support line for advice

My son is hypermobile as am I. There are huge ranges of hypermobility and varying issues with it.
Long term - I have genetic back issues that go hand in hand with it. I need constant Pilates to keep my muscles strong enough to cope with the “wobble” in my joints.

My DS used to fall over a lot. We thought he was accident prone. Ran everywhere but walking was tiring (running is easier for some reason). Walked on his toes instead of heel-toe as an instinctive way of keeping his balance. Diagnosed hypermobile at 3. Arches dropped in his feet (had been there previously)
It took 2.5/3 years of physio and daily exercises but he’s now up to “normal” range of muscle strength and only needs to be checked once a yr.
when he was diagnosed the Rheumatologist told us that if you get diagnosed and we’ll on the path to treatment before age 6/7, it can be corrected. After that, you’ll have issues for life (my back)
I am not medically qualified. That may have only been for my son’s particular set of circumstances.
He didn’t have issues with his calves or jumping.
He was just very clumsy and his legs would ache after short distances walked. But could run like the wind!

My daughter has hypermobility. She didn't walk till she was about 2 years old. Falls over a lot and only really started jumping this past year.
She wears insoles for flat feet also.
When we go for walks she gets tired really quickly and if she has had a very busy day she can sometimes wake in the night with sore legs. We still try take a pram out if we no we are going to be out walking a long time. Physio said she should only really walk for 10-15 minutes at a time. So we had also got her a balance bike.

It must be a worrying time for you. The CK results won't take too long and then you will be in a better position to know what you may be facing.

My daughter has hypermobility and low muscle tone. She didn't walk until 2 and behind with her gross meter skills. Walked young for her age with a large gait and fell over a lot. She didn't bear weight on her legs until about 18 months.

She's 5 now. Although still behind with her motor skills you wouldn't really know. She just cannot run 🤣

Supportive shoes may help. But often being barefoot at home is best.

Thanks everyone, appreciate the concern. I’m still waiting for the referral for the blood tests and physio, so I have a feeling it might be a while before I get an answer one way or the other. Just got to get by and try to stay positive while we’re waiting and hope that it is hypermobility rather than anything worse!

Replies, not concern!

Large calves in boys should always be checked out just to exclude any issues but it can happen for a number of reasons.
Does he walk.on his toes as toewalkers also have large calves?