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Hip dysplasia in an 18 month old

3 replies

SophiaPa44 · 10/07/2020 19:58

My 18 month old has just been diagnosed with quite severe hip dysplasia and has been given an emergency referral to the bone doctors for surgery. I am so worried has anyone else experienced a diagnosis so late? Because of COVID we had to push and push to finally get her seen in person. I don’t know what to expect and any advice is appreciated

OP posts:
paradyning · 10/07/2020 22:04

Hello, sorry for your diagnosis. All mine had this but were kicked up at screening. I think at the late stage they will need to have an op and be out in a cast for few weeks/months.
I don't know much about this process but saw that now M&S do adaptive clothing especially for hip spica so they may come in handy for you.

Miralice · 11/07/2020 07:33

Hi, have a look at the STEPS charity and there is a UK facebook group "My hippy baby UK & Ireland". My wee ones hip dysplasia was picked up after birth, but there is lots of people in that group with older toddlers and they will be able to give lots of advice. Please do keep in mind though that, as often in such groups, people with problems are more likely to write posts than those who have a smooth journey. So don't get scared by the posts. The vast majority of hip dysplasia treatments is successful and kids get on with it really well.
The STEPS charity has a few good guides and lots of information. They also used to have a phone line, but I m not sure if they still do.
All the best for your wee one!

RemoveAllPicturesOfRon · 11/07/2020 07:55

My DD’s was picked up just before her second birthday and had surgery about 4 months later. She’s now 5 and all is well so far.
It’s such a scary thing but it will be ok. As another poster said, Steps are really useful - they’ve got a Facebook page which lots of people post on for help and advice. If I can help with anything please do message me. It will be ok.

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