Hey, I’m really hoping I can find someone who has had/is having a similar problem with their little one and breathing problems, as we are at a loss now what to do....
Our little girl is 14 mo, she had her first admission for suspected bronchiolitis/rsv at 6 mo, since then she has had 9 hospital admissions, 3 of which have ended up critical on HDU/ICU. The symptoms are the same, the wheeze the cough the tug then the chest recessions. But each episode is getting worse and she is basically fighting for air/ breath 😫 when we go to a&e we get put in a ‘it’s another unlucky virus/bronch case’ box and left on Nebs for hours where she deteriorates every time. No one listens to me when I warn them how sick she can get, we just get forgotten about.
She has been on salbutamol since 6mo and is also on regular montilukast, I just don’t believe this can just be a virus?
Does anyone else have a similar story? What the diagnoses? DD is still in hospital now again on HDU l and I don’t want to be sent home empty handed again/palmed off, as I’m so scared this keeps happening 😫 xxx