Keep me company? 2 month old in hospital

[bumpysleighridejack]

Anyone up want to keep me company tonight? Been in hospital since last Friday with DC just 2 months old. This is his third stay in hospital with breathing difficulties, at just 3 weeks old he was on a ventilator in intensive care. Tonight he's hooked up to a thousand wires to have a sleep study. His alarm is going off every 2 minutes where he holds his breath. He's also not feeding very well which I find distressing because when he's not poorly he feeds so well and I find it such a lovely bonding time (breasted not that it really makes a difference but it's just something I really enjoy doing for him.) anyway trying not to get emotional or feel too sorry for myself as I know there are plenty worse off and we are so lucky to have the care we have. But he's so small and has spent so much of his short life with wires and tubes and needles and beeping machines I wonder what he makes of it all. So if anyone's up just give me a little wave, thanks!

Hi Bumpy, I'm sure your baby is in the very best place to get what he needs. You're by his side and he'll be aware of that, whether it's through the sound of your voice, your smell or your touch.
Make sure you take some time to look after yourself, because he'll need a strong mummy there for him when he's back home. 💕

Oh that's so tough Bumpy - poor little mite. Hope they get to the bottom of the problem very soon, hope that you are able to get some sleep at some point. for you, for him.

How very tough for you. As hard as it is, he's in the best place. I hope they can get to the bottom of it and start making him better soon. Try to get some rest.

Try and rest ... Make sure you keep your strength up, Eat and drink plenty

Thank you everyone, yes he's in the best place and across all the hospitals and wards we've been on everyone's been fantastic, they're throwing everything at trying to solve this. Yeah did realise today I haven't actually been outside since we came in last Friday, if we don't get discharged tomorrow I'll try and go for a walk. My brother and sister in law have been fantastic bringing me in lots of food! Will try and sleep soon.

Have you got anyone with you? I'm so sorry your poor little boy is going through so much & it must be terrible for you. I spent a lot of time in hospital with my DS (he's now 21) - I know how terrifying it can be. Make sure you look after yourself. Hope you get some answers & that he is better soon!! 🤞🏼🙏🏼

Oh that's so hard Bumpy, poor wee sausage. He's in the best place, and you're there for him. I'm sure he will sense that and also, he won't remember any of this when he's better, which I hope will be very soon. Look after yourself too

Queen- no I'm on my own but have had visitors. DH is with older DC. Really heartening to hear your DC is all grown up now! Going to try and get at least a little nap, thanks all for being with me, it's a long road.

Oh you poor thing. I hope you're having a restful 'sleep break' safe in the knowledge that people really do care - even if they don't know you. Really hope your little one gets better soon - stay positive 😘

@bumpysleighridejack it's hard being on your own - my brain would be going & nobody to share it with. Keep chatting on here tomorrow & onwards, if it helps. Loads of us will have been where you are. Sleep well.

Sending up good thoughts / prayers for your little boy & you. 🙏🏼

Anyone awake? He's taken a turn for the worse and we've had to abandon the study. I picked him up for a feed and he's just started coughing then stopped breathing. He's had a feeding tube in so I can't feed him for now which breaks my heart. No chance of going home anytime so.

That must be so scary, it’s okay if you want to have a good cry at one of the nurses. He is in the right place for that to have happened though, I do hope they get it all sorted out as soon as possible x

So sorry your going through such a bad time, I hope little one is better soon sending massive hugs! 💐

I'm sorry to hear that, it's awful when you just want your little one to improve and they get worse instead. You must be reassured he's in hospital when this episode happened though. Im up feeding my 2 month old DS, he was in hospital for 2 1/2 weeks after he was born at 33 weeks, so I know a little of what you're going through. It's horrible when they're all wired up. I hope the nurses are giving you some reassurance for now and you get some answers and improvement over the next few days x

Thank you everyone for being with me. Both my mum and DH will be asleep I don't want to disturb anyone until the morning. I hope this is a temporary set back and he will be bounce back soon. It just feels so relentless and it's awful to see him in distress he won't understand what's going on.

Oh no - I've only just seen your update. Hoping this will be just a minor setback. As PP has said, you were in exactly the right place when this happened - although that I'm sure is no comfort.

Hope things are looking better today & that you managed a bit of sleep.

FWIW, if you're up and DS is that poorly, I would wake DH - you need as much support as you can get. I'm sure your DH & DM would say the same. Don't shoulder this all yourself if you have them there.

Thanks Queen, he's on oxygen and a feeding tube now so we've gone back a bit but at least he can rest now they've taken the work away from him. Going to be here into next week at least, last night felt really tough I'm just trying to power through but asking for help when I need it.

@bumpysleighridejack hope things are a bit better today. I spent lots of time in hospital with dd1, including for sleep studies. I found it made such a difference to get off the ward for a bit and go for a walk/ get a coffee. Is there someone who can sit with your son while you do this?

Thanks for your message Rob, it's pretty gruelling but they are doing their best for him. Brother and SIL came in this morning so I could have a break and DH is up this afternoon and will be in tomorrow. Even just 10 minutes to step outside the ward helps.

Oh bumpy I really feel for and him - wee bubs! That's so tough. As you say, they've taken the strain off him for now - hopefully that will help him build up everything else.

Glad you got some time off the ward - I can bet you felt bloody weird. Make sure you eat & drink too. We so often neglect ourselves in these situations.

Sending un-Mumsnetty love.

@bumpysleighridejack how are you? How is you little one?

Hi Queen! Thanks for getting in touch we're still in hospital but he came off his oxygen this afternoon and he's back on breastfeeds, which are going well. Dr reckons he's on the up now which feels amazing. I'm hoping just a few days of monitoring and we'll be able to get home. Thanks for keeping me company, when you're going through the worst you feel like you're never going to come out the other side.

Ooooooohhhhhh I'm so glad to hear your update!! Hug your little bundle tight from me. I hope he gets home with you soon. Great news that he's off the oxygen & back on breastfeeds - that must be such a comfort to you. I absolutely get you - that road looks the bleakest when you're in the thick of it. I'm so happy to hear he's doing so much better. Hope you're still looking after yourself.

@bumpysleighridejack just checking in to see how he's doing. Hope he's much better!!

Hi Queen! Was going to update you actually! We were discharged yesterday evening! Lovely to be out, of a little nerve wracking I need to keep a close eye on him. Hoping we can get through the rest of the winter now. Thanks for thinking of us