Son 2yrs has a lump on his spine.

[L96F]

I don’t know what to do or what to think. I don’t even know if this is the right place to post this being my first time posting.
I noticed my sons spine looked like it was protruding under his skin. About shoulder blade level on his spine. Took him to the doctors who referred him to the paediatrics outpatients at hospital.
Over the next week I noticed it had started to become more enlarged. More so on some days and others not so bad. So I took him back to the doctors who put an urgent referral through said I should get the appointment within days.
Week later nothing rang the hospital who said they was waiting for me to bring him up to the children’s ward!! They said someone should of rang me... No one had told me.
Doctor had tried telling me it was a bony protrusion. Nothing more said and discharged us. Out of the blue I got a phone call from a consultant saying she wanted to see him as she was unhappy with the doctors write up. So I took him the next day... no consultant. Another doctor. Who once again said the same as before. I’ll be honest I argued my point and showed them a picture of the lump at its biggest. They sent us for xrays which showed a faint outline.

Trying to cut this short but want to give a clear picture.
11th dec saw a specialist who looked at my son and referred him for an urgent MRI SCAN .
12th dec had an ultrasound done where it was confirmed it wasn’t a cyst or fatty tissue. It’s a soft tissue lump underneath the spinal cord on top of the muscle. No diagnosis was given. Wouldn’t rule out cancer. If the mri showed the lump to be cancer or if it was something but attached to his spine he would then be referred to see a neurosurgeon for removal.

Had the MRI Scan on the 27th of dec. said within 10 days for the results. It’s been 5 and I feel like I’m loosing the plot. I just want to know my little boy is going to be ok ☹️

I keep thinking if it was anything like cancer surely they’d have rung by now but then I think what happens if they haven’t even looked at his results yet ...

Any advice or anyone been though anything similar?
Sorry it’s so long

I wouldn't be waiting around for them to ring you. I would be calling and calling and calling until I got answers and action is made.

Fuck that is tough.
Not same, but my husband had lump removed from spinal cord. Everyone was fairly sure it was cancer, but histology came back clear. It’s a mystery.
The wait and surgery were appalling, though. I cannot imagine how it feels when it is your child.
Just get through each day, part day, activity. Soon you will know, then you can plan.
All the best.

Thankyou I’m trying to. I did the stupid thing or googling a soft tissue lump. It only came up with fatty tissue or a Sarcoma. Which is cancer but doesn’t have any symptoms only the lump. Which is the same as my son. I’m praying to god it isn’t but they’re not giving me much hope. If I don’t hear anything by tomorrow I’m going to ring up. And once again have to fight my sons corner for them to do they’re job.i know they’re isn’t just me who’s waiting for answers on they’re child but I just feel like I’ve been fobbed off this whole time

Just to offer some comfort if it is a sarcoma.
My MIL had one removed from her skull three years ago. It was a short surgery with one night in hospital.

She recovered in days and required no further treatment other than biannual MRIs which have all come back clear.
So the worst case scenario is not definitely terrible.
I understand you must be terrified though, we all were when we heard the C word.
I really hope your son is ok.

Thankyou for you some reassurance. All I want is answers . Looking after a 4yr and 2yr old on my own as dads a lorry driver who only home at weekends and working aswell. On no sleep is knackering.