Help calm down please. Dd seeing colours and I googled it!

[LilQueenie]

Its long but I will try to explain clearly.

I have anxiety and i do worry about DD. In the past she has had some stuff happen we never got answers for just 'its probably' answers but nothing definite. I have been misdiaganosed in the past for something which nearly killed me as did my cousin. I also had selective mutism as a child which was never picked up on. This is also an anxiety disorder. It also concerns me that people think I over react because of it so I worry they won't take my concerns seriously.

Begining of Nov. DD had chest pain felt sick, headache and sore stomach. Came on suddenly as we walked home. Doc said chest pain was muscle related not to worry. ( I was diagnosed same thing a week earlier) urine tests came back normal for stomach ache as it was thought to be cystitis. She also complained of sore legs in the morning sometimes if she had to walk to shops. She also scratched under her armpit and body a lot. This symptom has come and gone for a few years. She also has eye pain come and go. it can be gone months then appear lasting no longer than a minute though a couple years ago it lasted for 20 mins sometimes. Now she has told me she sees coloured orbs at times. she also has a little bump behind her ear the doc thinks is just part of her head shape. (they misdiagnosed a lump in my cousin)

At the moment the leg pain, stomach aches, chest pain have gone. They were quite random not everyday and not altogether. The itching is a lot less but there. we had numerous trips to the doc (different ones) so last night I googled it. just the eye stuff and worst case was inflammation that needs to be checked. We just missed an eye test but can rebook asap.

Here is what has me worried. It also said lymphoma and I looked at it. It lists all of her symptoms and a few she doesn't have but its terrifying me. I watched my cousin get misdiagnosed then have to deal with exactly that as a child.

Normally this wouldnt even register as a worry for me even with my anxiety but it mentioned the other symptoms she had.

I needed to get this out.

How old is your DD?

You sound like my DH, my kids get ill and they are dieing in his eyes and we have to take them straight to the hospital

*posted early

If the GP is closed! The chances of your DD having lymphoma is very slim, especially if the symptoms she has have been going on for years!

some of the symptoms have been on and off. Lyphoma can take 5 to 10 years to really show up. One of the silent illness that can happen. Dd is 8.

I actually deal with most things quite well and often don't go to the docs at all. Its the bigger things and the possibilities of them. Dd isn't often ill just things here and there. She was at a specialist at one point when she was 3 for a possible brain tumour with the eye pain. when the eye pain subsided a few months down the line with no other symptoms they dismissed it.

If you don't want doctors to focus on you and write off your concerns, you're going to have to keep a better handle on your emotions. My son had a brain tumour. Before he was diagnosed we even had an MRI misreported as being clear. Can you imagine how crazy the docs thought I was when I kept taking him back to the doctors even though the MRI was 'fine'. It wasn't fine in fact, and it took a year to get a proper diagnosis. If you overreact with everything though, you're going to create a lot of noise and if there is something lurking, you'll never get to the bottom of it.

well thanks for that. I can't control the anxiety and that makes me feel worse.

Medication could help?

I feel for you. Health anxiety is horrible. How is your DD feeling?

It may be worth speaking to a doctor about your concerns. We have one who is always willing to listen. Some are not so good.

You do need to step away from Google though.

dd is hyper as usual. running around, happy playing with her new toys. I'm just about to run her a bath so she can use her new bath products. Never known a child to want so many baths. Nothing is really getting her down.

I'm getting the opticians appt followed by one with my own GP and asking for a blood test. Just to rule anything out, put my mind at rest and a general check to ensure she isn't deficient in any vitamins or minerals.

I should add my anxiety has been ok but when everything with dd started to accumulate one after the other within a week or two, well my anxiety has been pretty much up there.

OP, I get how you feel. I have had HA on and off for years, about myself and DCs, and also was misdiagnosed before being diagnosed with a potentially fatal fairly rare condition.

So, there’s two things here - the symptoms and your anxiety about them.

I would keep a diary of the various symptoms for a good few weeks or months - it will help you to see how frequent they are and which are really the issues. I would also suggest starting new thread just about the colours as posters may have useful advice for that without getting sidetracked by your anxiety. As it happens two of my DC reported seeing colours and shapes in the dark when younger and after optician and Dr visits we wrote it off as ‘one of those things’. They seem to have grown out of it.

As to the anxiety - I have trained myself not to google symptoms or deadly illnesses I’m convinced one of us has got, and instead just track symptoms then investigate with dr when persistent. Remember you’re not a Dr and you can’t possibly know all the conditions that could cause a certain symptom.

Sorry you're going through this OP, health anxiety can be really awful. Do you have a good GP yourself? Sounds like you might need to speak to someone sooner rather than later if (as you mention) your feelings of anxiety have got a bit worse recently? Best wishes x

Oh I just had another thought - I get optical migraines, which I experience as a rainbow coloured shimmering circle in my field of vision. I have no idea if children can get this but my optician told me about it, may be a possibility or something to query with optician.

I missed the bit in your last post about having the optician and gp appt set up - that sounds a good plan, hope they can put your mind at rest.

My first thought was migraines, it would explain the lights and the chest pain/abdo symptoms. 9 is about the right age for them to start.

I would go to gp with your specific concern for them to tell you why they have ruled it out and then a separate appt to discuss anxiety. I take duloxetine for anxiety and it was like turning a tap off-miracle worker. I’ll be on it for life.

I had migraines as a child (and an adult) from around aged 4. Is there Anythingbthey could be causing your daughter stress? Mine were directly linked to contact with my dad.

the eye pain never got a diagnosis. I did my own digging and thought it was a type of headache. this time round i mentioned to the doctor and he said the onset of a migraine without checking her at all. She had never actually had a headache though and it never lats more than a few seconds 30/60 max. I did link the colours to migraines too which is why I googled it again. I was calm over it. Its not exactly bothering her either she just tells me about the pretty colours.

My doctor is well aware of my childhood and anxiety. We have discussed where I think it stems from. we also discussed medication and know that it won't take away the root cause. I had therapy for the root cause of most of it.

I thought migraines too. My DD has them. They are the result of dairy intolerance, so this could also be contributing to her other symptoms.

I have to admit I too thought migraine.

Both myself and my youngest daughter began to get significant forms of migraine by 8&9 respectively. It included feeling sick/being sick, weird referred pain sensations, headache, sore stomach. The pain round the eyes can be breath taking especially if you have an occular varient of migraine. I became very suspcious when DD came home from school after being very sick, again, and asked me if everyone saw pulsing purple flowers that filled your vision before you strated to be sick and felt awful. It was the best way she could describe scintilating visual aura at 9.

Visual aura in migraine can last for-30 minutes. It is possible to just have migraine aura but not develop the debilitating headache. Pre-teen Children tend to have abdominal migraine cuasing stomach ache and feeling/ being sick. Puberty tends to trigger it to causing headaches on top.

Migraine is best diaognosed by listening to a description of symptoms and by keeping a headache diary of attacks to build a pattern of what kind of migraine it might be. It is not one you can visually examine.

I thought my grain too. My ds started at age 10 with pain behind his eyes. A few years later he was diagnosed only because I was worried about brain tumours (a friends dd died died a few months earlier from one ) the Dr was very good and went through a series of tests to rule it out.

I used to get coloured orbs, often first thing in the morning. I thought they were fairies

I have no evidence I don't have a brain tumour, but that was now around 40 years ago, so it hasn't done too much harm.

I understand it's a difficult time. My initial thought is migraines too! It fits her symptoms perfectly.
Is there a family history for migraine? (We have, coming from my great grandmother - skipping my grandfather, and father, so it took some time to pinpoint.)
Secondly, please also talk to the GP about the lymphoma family history. If it's genetic, your DD will be able to get the right tests done and hopefully you can out your mind to rest.