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Brain scan confusion

1 reply

doubleot · 27/11/2019 16:12

Hi
DS has a head and spine MRI for a suspected tumour around 12 days ago and was sent a follow up appointment for the 18th of December (this was sent before the MRI). Yesterday we received a letter saying that the follow up appointment with the neurologist was bought forward to the 4th of December and we put it down to somebody else cancelling and good admin from the hospital. Now we’ve received a third letter for a CT scan of the head set for the 9th of December and I’m not sure why. Nobody has called us and the change in the date for the follow up is making me think that something was found in the MRI and a CT is needed (assuming neuro will explain this to us at the follow up). Am I correct to be concerned or is this routine (neuro never mentioned a CT during first consultation).
Thanks

OP posts:
triballeader · 28/11/2019 09:30

Call the consultants secretary and ask for someone to speak with you ASAP as no-one has explained any of this to you and you are now more than concerned.

I had a lovely oncology nurse call back. Once she had realised no-one had mentioned anything to me they explained they had called us in without notice as they were sure daughter had osteo-sarcoma from details sent in that day by referring hospital and wanted to see her ASAP. She answered questions about where to go, what would happen when we arrived and made a ghastly load of worry a little easier to bear as this had all come so soon after life saving surgery following a life changing accident that nearly killed my daughter.

Daughter had multiple x-rays from many angles [her bone lessions show up on x-rays] CT scans and MRI scans at the specilaist hospital in addition to the initial ones. These were used to give her ortho-oncologist surgeon a far greater clarity as to what could be going on behind the x-rays before we saw the oncology team. They helped inform and decide what treatments would be best for her.

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