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Dla

7 replies

horuso5 · 20/11/2019 18:44

Has anyone with a child who suffers with tachycardia claimed dla and received it ?

OP posts:
elliejjtiny · 21/11/2019 20:51

No but I have a child who receives dla for something else and 2 who were turned down. It's more about how the condition affects them rather than diagnosis although I find a diagnosis of something helps as it can be used as proof that symptoms are likely to be permanent. In theory you should get it if your child needs more than one hour extra care a day than another child of the same age due to their medical condition/disability but it can be hard to prove that.

How old is the child? Do they get extra help at nursery/school? Do they have lots of hospital appointments/admissions? Do they need medical equipment/medication? I've just done the dla form for my son who was turned down last year and these are the kind of questions they will ask. If you have a community nurse they can help you with the form.

horuso5 · 22/11/2019 05:49

She has been diagnosed and I sent the diagnose letter with application and she takes daily medication for it prescribed by cardiologist, she has a lot of hospital appointments, time off school, I have to collect from school at least twice a week.
She also has conditions which I listed along with all consultants names in all 4 hospitals we have to visit

OP posts:
stucknoue · 22/11/2019 06:55

With dla for kids they are looking to see whether their condition required you to provide significantly more care than a "normal" child of their age eg for a 5 year old you would expect to help them with many things and bathe them eg but by age 10 you wouldn't expect to help with bathing or hygiene so if you are still assisting them or reminding them then that's a point towards receiving it. We managed to get it from age 10 because prior they claimed the level of care was within normal range, by 10 they accepted that changing sheets nightly from wetting, supervising showers (epilepsy), and needing to facilitate life in general (asd) was beyond normal parenting.

horuso5 · 22/11/2019 07:17

Ok thanks guys !
We will just have to wait and see

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Chocl8 · 22/11/2019 10:47

If you get rejected, don’t be afraid to put in a Mandatory Reconsideration response. My DD had her DLA massively reduced when it was reviewed last year but the Reconsideration took it back to her normal levels (I’d hoped it would since her needs had gone up). I think that it can depend who picks up your application at the department, and I also wonder if they have targets for rejections to meet!

As others have said, its about the additional care needed, not the diagnosis (but I am sure diagnoses help!)

horuso5 · 22/11/2019 20:09

Thankyou all for your help, as I'm sure it's the case with all of you juggling a poorly child, other children and work is a bit of a strain sometimes.
I have to leave work a lot to collect her and take care of her

OP posts:
Lougle · 22/11/2019 20:26

As others have said, tachycardia in itself wouldn't get DLA, but if her care needs are significantly higher because of it, they would.

What does collecting her and caring for her entail? They may refuse it if you're not having to 'do' anything at those times. They would generally be looking at daily activities of living.

E.g. Asthma that is well treated with maintenance inhalers plus ventolin as a reliever wouldn't get DLA. But Asthma that is brittle, requires nebs, breathing technique support, reassurance, quiet time, etc., would.

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