So ds, 13, has had problems since January this year. Basically horrific diarrhoea and pain etc. Had bloods and stool samples done and all ok except low ferritin. No one concerned. Saw paediatrician in July and told me it was allergies so spent 3 months doing exclusions and no change. I then found out he had a rectal pro lapse. He had it for a while but I didn’t know. He is autistic so not great at relating things. Had a follow up with paed who said let’s do an X-ray which showed severe impaction so had 4 weeks clear out of moviol.
He went to hospital last week under a different paed (surgeon) who injected the area of the pro lapse and said it had 75% chance not working and sometimes needs multiple injections. Anyway same day we came home, ds went to the toilet and the prolapse came back out so it failed. I rang hospital on the ward but they couldn’t help. Left message with secretary and paed wasn’t concerned. I rang back today as I’ve had no answers what happens next. Secretary told me paed said I have to take him to an out patient appointment. Won’t rebook him for another injection. He said after the op that he must have been impacted in the past (unknown to me) and that the area was ‘very baggy’ but he wasn’t concerned. The secretary told me paed said he wasn’t concerned and will probably correct itself?!?!?!? This is coming up to a year!!!
I’m really worried. Ds still has bad belly, aches, opens his vowels 2-3 times a day and still has the pro lapse so we’ve got nowhere. I’m really scared. Can anyone share experiences or tell me what’s likely to happen next? Surely the longer it’s left the more likely he’s going to have future problems? He has mental health problems and severe anxiety which he has medication for so this is a massive concern despite me telling them this.