Distal/mild epispadias/hypospadias

[Momwithaquery]

Does anyone have a baby boy with distal/mild epispadias/hypospadias?

Hi @Momwithaquery, my son had hypospadias and chordee.

Hi PonderLand.
Thank you so much for your reply. My baby has mild hypospadias and is due to have surgery to repair this early next year. The surgeon has assured us everything will look 'normal' afterwards but I worry about it all the time. Did your baby have his surgery and did everything go ok for him with it?

Where abouts are you? I would suggest having a look on the hypospadias support Facebook groups, there's some very knowledgable people on the groups and you can find other parents who's children have had the surgery (by the same urologist in some cases) and they will have plenty of tips for after care and what to expect.

Unfortunately my sons first surgery failed when he was 18 months old but we had a second surgery last month when he was 3 and that has taken really well with no problems. It is difficult for the first few weeks but some children don't seem to be bothered by it, others can have a harder recovery but you have pain relief and bladder spasm meds to help them. My one suggestion is to make sure you don't go home without bladder spasm medication we got oxybutynin, it takes a while to start working but once it did my son was much more comfortable. Best of luck for the surgery, I hope it all goes well for you and your son x

Thanks so much for the reply and the information and I will definitely check those Facebook pages out. I've seen loads of posts on Mumsnet about hypospadias /

but they're all about ten years old - you are the only person who replied to my post so maybe it's not as prevalent as it once was. I'm really glad to hear your son's second surgery went well and that he's doing well - hopefully it will be the same for us.
Thanks again for the replies!

@Momwithaquery

I do always wonder about how 1 in 300 boys can possibly be born with this birth defect when nobody has heard of it! The first I'd heard about it was when my son was born and it was the same for my immediate family. My mums been a nurse for 40 years and she's never heard of it. My sons nursery have never of it either.

Once you join the Facebook groups you'll be amazed how many parents are facing the same thing as you and will understand your concerns. It's very useful for post recovery too if you are worried about something, the advice is invaluable and you can easily find out what's normal and what isn't. It's how I managed to find out my sons wasn't going right as the leaflet they sent me home with was inadequate to say the least.