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Shaking/shivers

4 replies

butterandbread · 18/09/2019 11:02

I was feeding my 9mo yesterday when I noticed her right arm shaking, carried on feeding her until this progressed to brief bouts of full body shaking. Didn’t seem to be a seizure (no eyes rolling, wasn’t limp afterwards, didn’t seem dazed etc) and would only last a second or two, but when I took her out of her high chair she had become very quiet and just not her usual self.

Within a few minutes her top lip had gone blue, but she was having no trouble breathing, was just very quiet and still. I took her temp and it was 35 so wrapped her up and called 111 for advice.

To summarise the next few hours, they arranged and urgent call back to book an OOH appt within 2 hours, she then vomited (vey unusual for her) so I called back and after discussion on their end they recommended I call 999, as did the OOH doctor that called me back.

I decided to take her up to hospital myself and was basically told after a long wait that she seems fine, her blood sugar was fine, and as it wasn’t a convulsion I should just keep an eye on her as sometimes things can’t be explained with babies Hmm

I was just really looking to see if anyone’s had experience of something similar? I’m absolutely not saying I know better than the doctor but I also know my daughter and I’m not just 100% comfortable that I can dismiss this as nothing.

She was cold again when I got her up this morning and has been very tired, but has been more responsive and playful than last night. Hasn’t wanted to eat much and has had a few more bouts of the shivering, so I’m torn over whether to take her to the doctors or whether I’m being a paranoid mother!

OP posts:
Are your children’s vaccines up to date?
Daffodils07 · 18/09/2019 17:59

I know it might be hard but could you video her when she is having these shiver type episodes?
And do a diary of when it happens,what happens after.
Then go back to the doctors, sometimes it can be just one of them things but I would always trust your gut feeling.

butterandbread · 18/09/2019 20:51

This reply has been deleted

Message withdrawn at poster's request.

butterandbread · 18/09/2019 20:54

(Asked for advice on AIBU as well and responded to wrong thread above Blush)

Thanks for the reply and encouragement, Daffodils.

Unfortunately the episodes are just too quick to get my phone out and recording. But although today has been an improvement, because we have still had a few instances and I just don’t feel I can 100% rule our seizure, I think I will be trying for an emergency GP appointment tomorrow.

OP posts:
paradyning · 18/09/2019 21:04

Could it be Infantile Spasms?

Seizures don't have to be as you describe. Please watch this video and as pp said, try to record footage - I know it is difficult to do.
If you do suspect IS then you need to go to the nearest children's a&e and say you suspect them. They are a medical emergency.

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