My Dd(13) has been looked after by a consultant since she was 3 for multiple UTIs. She is not really dry day or night. The advice has been drink more, double void and take laxatives. She’s been hospitalised twice in the last 18 months for a kidney infection and a nasty UTi. She’s been referred to the children's hospital for renal investigations which have come back clear (following a DMSA and MRI) and now we’re waiting for a urology referral. The problem is they just don’t know why she keeps on getting infections.
The current challenge is that she has been feeling unwell with utis since June (she was last in hospital in Feb) and has been on the usual round of antibiotics constantly since then. I have been in regular contact with her consultant and we ended up in day ward last Friday, sent away with yet another set of antibiotics which don’t seem to be working but should be according to the lab results on her sample. She feels like crap and we have been at the GP 3 times in the last week. Today the GP said try different ABs and come back tomorrow if she’s no better. I’m at my wits end here as she really isn’t poorly enough to be in hospital (she has a needle phobia too so IV antibiotics would be a nightmare to handle) but she’s been feeling ‘low level’ unwell it’s very difficult to manage.
I’m just putting this out there in case anyone else has had a similar situation and had any advice.
I’m tempted to stop the antibiotics and just see how she is to get to a baseline as I don’t know if it’s the antibiotics making her feel awful.
Is there anything else I should be doing? There’s an excellent Dr at the GP surgery and I’ll give her a call again tomorrow as I just don’t know where to go from here.