14 year old smells of acetone

[DakotaFanny]

Just that really....he says he feels absolutely fine but the following things are really bothering me.

He smells like I smelt when I did Atkins! He eats plenty of carbs.

He is suddenly heavy eyed- his lids are more closed than usual. But maybe he is just tired! He’s been up a bit in the night going to the loo etc.

He’s drinking loads (but seems to be doing this because he’s been told we should drink 8 glasses a day etc.

He’s weeing a lot (see sleeping but also, increased liquids so of course he Is!)

It’s all so easily explained, except for the smell, and as I said he says he feels absolutely fine.

Would anyone be worried??? (He is never ill!)

Thank you oh wise mumsnetters.

Foodtheif - I'm keeping an eye on high bloods tonight as may have to do a correction through the pump. Hope you get sone rest soon.

Does your daughter have a Libre? We're thinking of getting the miaomoao to allow us to go to bed without being tempted to scan through the night. Would alarm if action needed.

I don’t have any advice or anything OP but I just wanted to say what a bloody brilliant mum you are OP and a massive too!!

Hope you’re all doing good!

Ooh, I had a proper pity party last night! Sorry!

And thank you for all your kind words. Sorry to all those who are also struggling, or struggling more. I hope you managed to get some rest foodtheif and mint and that your DC are okay. X

Definitely you need some time to grieve this so don’t ever worry about coming online to ask for support or a virtual hug. Hope he has a good day today. Hopefully the clinic explained that if his numbers have been high for a while, he may experience some hypo symptoms when he is still above the official threshold. On the positive side, it sounds like he may have hypo awareness which is great

Diabetes

Diabetes

Really?

They did kind of explain that worried but I think you have done it more clearly so thanks. And yes, potential hypo awareness is excellent news.

Have a good day.

My grandad was 94 when he died.

Make use of the psychologist. The teens I know have massively struggled, but they have grown up with it.

Dgs was diagnosed two years ago when he was 5. He got his insulin pump in February and, for him, it’s brilliant. He is getting the libre at the end of the month which will help as he has very little hypo awareness. We have his “kit” in a lunch box which goes everywhere he goes. Even if we’re only popping out to pick up my youngest from school the kit goes too. He belongs to a local group for children with diabetes and has been on quite a few trips so he gets to meet other diabetics and doesn’t feel like he is the odd one out. He’s the only diabetic child in his school so there’s been a lot of staff training involved.

It’s been no really hard for dsd as she worked irregular hours and she was having to rely on too many different people looking after him. She had to give up her job. However she now has a job she loves and I’m able to have him on the few occasions she needs it. We are all getting into the way of it and he’s a real wee trouper.

Best wishes to you, your ds and family. You will get there.

I have been T1 for 36 years...my dad also had it and died aged 89. Look at the 5 stages of grief model. Get the book think like a pancrease. Ask your team to put you and ds on DAFNE course and enquire about an insulin pump, they are brilliant. Diabetes UK have a great website with lots of info and family meet ups. Facebook have good support groups. It's a massive learning curve, but you will get there...my favoured hypo treatments are mini bag of Haribo or small carton of Apple juice

Thank you all. I feel like we’re starting to win. Numbers are now almost all under 10, and often 5-7, and we’ve been able to drop the 3am check, so we’re feeling slightly more human!

We’ve survived the first hypo!

Well done you!!

Yay!

You can do this! Another hurdle crossed

Doctors. Now.

Sounds like diabetes.

Oh shit! Ignore my previous post. I really need to get into the habit of checking the dates on threads! I apologise

Granny your post(s) made me proper laugh!! You are right, my love, it was.

🤣

Have you joined the diabetes U.K. Facebook page? Good information, the juvenile diabetes research organisation is good too, my friend is a board moderator. The only other thing going forward is that if he has good friends that he's likely to have sleepovers (less of a boy thing maybe?) teaching the parents is a good idea, I have been taught how to test and give emergency insulin because my friends dd is really uncontrolled, a bit better now she's 17 but in girls fluctuations in hormones make things complicated

I have yes, and a parents one too. They’re really good.

One of the lovely things that has come out of this, so far, is how amazing his friends have been. A mum texted me last night, having heard the news from her son, to tell me how proud he is (her son) of my DS.

That's fantastic @DakotaFanny - my DSis younger and has a different medical condition but probably one of the most important things has been the support from his friends. They constantly have his back which is amazing

Hello! Nearly five weeks in and still surviving. I miss the support of this thread though!

Getting his libre on Friday- CANNOT wait! Is it as life changing as we’re hoping???

Good to hear from you I was wondering how it was going .The jdrf discovery days are worth a go to meet others in the same situation and often hear inspiring speakers , also parents support network for your hospital region often arrange get togethers .Libre was life changing for my child ,self funded for years ,so glad it’s more freely available .

Hi Toadstool. Sorry if I’m being dim....what’s jdrf?

I think we’re very lucky to be getting a libre for free and so quickly, from what I’ve read online. We are so excited - feels like we’ll have some freedom back and I am so happy he will be doing less finger pricking. He seems to find them more challenging than the actual insulin injections.