Heart murmur and night sweats

[PonderLand]

Hi my son is 3, he came down with a temperature last Thursday and started with muscle spasms/twitching that he's never done before. He became drowsy and fell asleep whilst I was on the phone to get an OOH appt, the twitching carried on for about an hour then we took him to the OOH who said it was viral. He was sick once when we got him home and since then his temp has been okay but he's been waking in the night which is unfortunately normal for us. He has really bad night sweats which seem to wake him up I have to change his pillow and sheets etc this has been going on for about a year every other night!
I've told his doctors but they've never been concerned.

Last night the same thing happened with sweating so I put him on my chest to try and get him to calm down and again he went drowsy and fell asleep which is unusual for him usually he wants to go downstairs. Because he was laid on my chest I could feel his whole body twitching and tensing, his legs, arms, bum, stomach, everything was just twitching. It went on for about 10 minutes, his heart was really pounding. I took him to the gp today and he said it sounds like rigors? Shivering? It really didn't feel like shivering to me it felt like twitching muscles all over. He checked him over and all his glands are swollen and he found a heart murmur which he's never had before. He sent us away and told us to go back after our holiday for another check up, this Friday we're going to Cornwall for a week. I really can't stop worrying about him, it's all so unusual for my son, he's had plenty of fevers before but I've never felt him twitch so much and the heart murmur has panicked me. I googled (I know I shouldn't of done) and it says the murmur can cause excessive sweats. I told the gp about the sweating that he's always had and he said he doesn't know why he does that. I'm at a complete loss, one part tells me to just treat it like a normal virus but another part of me is really panicking!

@woodencoffeetable unfortunately not at the moment. if it was before December then we would have but my dp is a freelancer and he had a very slow December and January so we have no spare money until March/April. We've had to lend money from the saved tax money just to pay all the bills this month.

My son also started developing a rash on his face around his mouth and in his nose in January. I've just collected him from nursery and it looks worse than ever and has spread to his cheeks now. I've looked at some photos of rashes online and it seems to look like periorificial dermatitis? Another question for the doctor I suppose. I've attached a photo of it if anyone knows what else it might be?His cheeks are shiny in certain lights.

That looks like cold weather rash when they lick their faces or wipe snot across their cheeks. My son has an eczema ointment called eperderm (not quite sure of the spelling) and it works a treat on the rash he gets on his face in cold weather. The ointment is similar to Vaseline.

@CornforthWhite thanks I did think that at first as last year he kept licking his lips constantly and he had a sore red line under his bottom lip but he isn't licking them this year. I'll take him to the pharmacy to see if there's anything otc that will help. We've tried Vaseline but it didn't seem to make a difference.

Argh. More shit to deal with literally.. this past week he's started having diarrhoea. Sometimes it's food mixed with mucous, or it's like water with thick jelly mucous! He's doing it during his sleep and not waking up which is so unusual for him. It's just one thing after another, hopefully it's a bug that will pass.

I rang the gp last week to find out about the refused referral, the consultant who refused it did get in touch with the original paediatrician and has asked him to investigate so that is why we got the appt through with him for the end of February. He's also got in touch with the dietician we saw about weight loss to ask her to see us again but no appt has come through yet. The gp receptionist has printed the correspondence off between the consultants to give to me so I will pick that up this week.

I thought I'd update here. The appt went really well and the paediatrician was excellent, he talked to us for 45 minutes which I wasn't expecting. I went in with my partners dad which helped as he remembered to ask questions that I forgot and he entertained my son so I could have a proper chat to the dr. My sons had another blood test and they're checking fbc again, thyroid, celiacs. He's also given us a stool sample so just waiting to catch one. He's prescribed some steroid cream for the rashes and another cream to apply once we've used that. My sons still struggling with his bowels so we've started using movicol daily. Hopefully things will get moving so we can do the sample.

He's not too well tonight and said he feels poorly, high temp but no sick or anything so that's a positive, he's asleep on the sofa but I'll probably take him straight to bed in a minute. He started with earache and conjunctivitis again at the weekend (last one was in December) so that'll be making him feel miserable too. His teeth have started hurting him so we've got his first dental appt tomorrow, probably related to the ear and eye thing though. We saw the dietician who told me to keep doing what I'm doing in regards to feeding my son whatever he wants.. ice cream cone for breakfast and bread with lots of margarine for tea.. He's stopped eating his lunches at nursery now but they try to encourage him. I'm going to give it until the end of the week and then I'll see if they'll allow him to have packed lunches.