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Children's health

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Toddler failure to thrive

4 replies

FiveMinutePeace · 23/05/2019 21:04

So 2 year check today .
She's already under a paediatrician as she has a global developmental delay ( mainly gross motor but also speech and communication)
she was born a healthy 9lb (75percentile) , Length 25th, head 50th, head dropped immediately to 25th at 2 weeks so i suspect measured wrong a birth.
Length and head roughly followed charts until around 6 months.Now around 0.2 percentile.
Weight peaked at 6 months to above 75th and now at 2 is creeping down to around 25th.
She has absolutely no appetite ( a meal is equivalent to 3 deserts spoonsful twice a day as point bland refuses breakfast and snacks) and barely drinks a few ounces amounting to maybe 10 fl oz a day.
As a result shes constipated and requires movicol to get anything moving and even then its not easy.
She sleeps 3-4 hours after lunch and a good 12 at night.
She is super clingy and wants to be held most of the day. She will sip her cup if I read her peppa pig so we read a lot of books!
She absolutes freaks out at strangers, shops, busy places.
She cannot walk without support.
She communicates with pointing.
I have her on probiotics and vitamin drops and just ordered some more Eye q.
Shes has full bloods done by the peadiatric team including genetics all so far show normal range and no abnormalities.
My gut instinct says endocrine as a family history but they only tested TSH which was 2.4 so therefore normal and they wont test again.
I am so worried as I feel if we dont find a way to help her soon she may never catch up.
thank you so much for reading this far and any guidance or thoughts appreciated.

OP posts:
BogglesGoggles · 23/05/2019 21:09

I can’t offer any advice but wanted to say that you are doing really well and to keep pushing for testing or consider getting it done privately. I hope you get some answers soon Flowers

FiveMinutePeace · 23/05/2019 21:20

Thank you.
I wish we had the finances to go private as it really does seem like the only way to get her looked at properly.
Ive been hitting google and Thyroid, B12 and vitamin D defficiency all seem to point to her symptoms.

OP posts:
cestlavielife · 24/05/2019 22:47

Test for coeliac as can stunt growth

What genetic tests has she had?
Given the delay she shoukd have a microarray to look for any small chromosome deletions/ duplications.

cestlavielife · 24/05/2019 22:48

Also ask to be referred to community dietician..keep a food diary for 7 days
And specialist feeding speech therapist

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