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Asthma at night

4 replies

Clairaloulou · 20/03/2019 11:39

My son is 10, he has brittle asthma (first symptoms at 10 months, diagnosed just before aged 2, on every med available and has never been under control). He has a lot of symptoms at night, coughing, wheezing and even attacks, which unless it is really severe he usually sleeps through. He may stir, but only a few seconds. He sleeps so deeply, that it's a running joke in the family that he would sleep through the end of the world. I have to use a mask spacer to give him his inhalers as I cannot get him sufficiently awake to use the mouthpiece one.

He's had a really bad year with his chest, and because of this his attendance at school is in the 50s. He has a lot of anxiety in general (finds school difficult due to sen, I have heart failure, we're on our own, he's very sensitive etc etc) and so I contacted CAMHS to see if we could get some extra help with his mental health. CAMHS of course wouldn't entertain us, and referred us to something called the 0-19 service, and a school nurse came to visit us first (she wanted to go to see him at school first but I said she'd be better coming to the house as she'd likely get more out of him where he feels comfortable). She came and lectured him about going to school which I was Hmm about. She asked us various questions but seemed to focus a lot on the fact that he often sleeps in my bed. It's just easier with his symptoms.

Anyway, last fri he was off school because of his chest, and Monday I picked him up at 2 so he didn't have to do a full day because he was worn out. She rang me asking why he wasn't at school, and I said because he'd been ill over the weekend. She'd got it into her head somehow that he was off because he was anxious. We then talked about his nighttime symptoms. I reiterated what I'd said about him sleeping deeply and she said that there was something very wrong here, how could he sleep through it. Anyway, she said she wanted to see g tomorrow (tues) so I said ok.

Fast forward to yesterday pick up time, George got into the car and burst into tears, asking me if I'd been lying to him about his asthma. Turns out this woman has gone into school and said to him (they were in a room on their own) that she doesn't think he's having all these asthma attacks. She's the gone to the staff and asked to see his meds and said I'm doing it all wrong! (Which I am bloody not!)

So, my son was really shaken up, said he didn't feel safe after she said that, so just said nothing.

After that long garbled post, my questions are: does anyone else's child sleep through their symptoms in a similar way, and am I right to be as furious and upset as I am about what this woman has said?

OP posts:
Nogodsnomasters · 20/03/2019 18:32

I'm sorry I have no experience of asthma but I just wanted to send a hand hold as it must be scary managing his attacks when you're on your own and also suffer with heart failure, you're a strong woman in my opinion. In regards to this nurse I would call her and explicitly tell her you do not appreciate her implying you are a liar and you wish to be given the details of her superior to make a complaint about her behaviour/comments around your son.

Pinkkahori · 20/03/2019 18:39

My dd has asthma, diagnosed as a toddler. She is a couple of years older than your son.
She is usually well controlled but spring is her worst time of year so she is wheezy at the moment.
She always wakes when her chest is bad. I sometimes sleep in the spare bed in her room to keep an eye when she is unwell and i have often seen her sit up, take two puffs and lie down, without ever seeming to be totally awake.
I remember worrying so much about her stopping breathing in her sleep but a nurse told me that if you are struggling to breathe you will wake with the effort. Don't know if that's true or not though.

ZaksDad · 24/03/2019 15:50

I had had asthma since i was a baby. Alot of things used to trigger it, wet paint, strong smells, running. Now it is mostly affected by sudden changes in weather.

I was and believe like your son during the night at times. I could be wheezing badly but somehow i don't know and have to ne woken up to take my inhaler. It is like anything, alot of people that don't have or know anyonr who has asthma just assume it is the same for everyone. What can trigger 1 person may not trigger another. I could go years without using my blue inhaler then suddenly i need it more than a few times a day.

I hope you get things sorted soon or controlled. I found aswell at times that those who are there to help actually are no good at times

consciousparent · 03/05/2019 12:37

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