My little girl

[pinktigereyes]

Hi everyone am new here I just want some advice..so if have a 3 year old daughter and she's not had an easy start in life..started out cic didn't now I was pregnant ..I took a pregnancy test that confirmed I Was so went to midwifes who thought I was 26 weeks pregnant turned out I was 34 weeks gone I never felt her kick I was still having periods I found out it was because I had quite a large placenta which was lting a cross the birth canal, and she was lting transverse and it ended up with pregnancy diabetes..anyways cut to the chase. She was born via c section at 38 weeks when she was born and we were on recovery I noticed onside of her face was a little larger than normal and a bruise from the bottom of her ear to her chin they put it down to the way she was lying transverse and face lookin down towards the placenta. She's had on going problems turned put she has stuffing of the muscle down her neck and and a little under chin, she gad physio and also got diagnosed with global develop mental delays..she didn't sit up or roll over till she was over a year led she doesn't really talk much a load of other jibberish but some words you can make out, anyways things were bugging me physio said she had quite bendy legs so I asked if it as possibleasy she has hypermobilty and she said yes and that she never thought about that. So she got diagnosed with that she started walking at two then one weekend she kept say her legs were hurting and she wouldn't walk so took her to a and e who tried to send us for an xray but couldn't be done because she was so restless so they made can appointment to go back which then they admitted us for the weekend they did all tests and everything was clear they did more xray cam back clear so we go discharged she started walking again and hasn't really stopped like that...but now she's 3 I was trying to aim to get her out the push chair and walking but we run in to problems when she walks to nursery she'll only get so far and say her legs are hurting to the point she's crying ( I feel so bad) but now she only makes it half at down the little Hill and she keeps saying 'ow it hurts'.. she's fine in the house but she knows she can rest if she needs too..how do it encourage her to walk if i there sore? I've tried getting her to walk with her dolls pram but it's the same again.. she doesn't alk up or down the stairs she us currently potty training to and gets the idea of that.she's currently getting tested for autism. She had some signs pediatric agreeswith me and sees what I see she is a lovely little girl with a big personality but I'm struggling to get her to mix socially she's fine if kids are running about but she doesn't like to be near them or touching her or sitting next to her..it's hard going to family memembers because she constantly cries..the kids do bully her though constantly biting hitting and pulling her hair sitting on her etc and as she can't say she points to what's happened buto people shout at her because she can't express how she feels she doesn't hit or bite back. Clothing she is fussy of she will only whee if they've got certain things on she won't wear fluffy jumpers or jeans should oestrogen if something wasn't hers she won't wear it, she got given some clothes that belonged to my niece but won't wear them, food she will only eat flood the codour of her skin..she won't eat meat on dinners she won't allow sauces from beans and spaghetti go all over other food on he plate , she's got to have the same coloured fork or spoon to the dish she has.sometimes it's a struggle to get her to eat. She loves music and loves to dance..if we go from Sunderland to Newcastle by metro and she'll go thru every metro ostation we stopped at she's good at matching things she'll have to have things lined up if she doesntcthryvall have to be the same way I could go on lol but I'll let stop there any ways thanks in advance

Hi everyone am new here I just want some advice..so if have a 3 year old daughter and she's not had an easy start in life..started out cic didn't now I was pregnant .

.I took a pregnancy test that confirmed I Was so went to midwifes who thought I was 26 weeks pregnant turned out I was 34 weeks gone I never felt her kick I was still having periods

I found out it was because I had quite a large placenta which was lting a cross the birth canal, and she was lting transverse and it ended up with pregnancy diabetes..anyways cut to the chase.

She was born via c section at 38 weeks when she was born and we were on recovery I noticed onside of her face was a little larger than normal and a bruise from the bottom of her ear to her chin they put it down to the way she was lying transverse and face lookin down towards the placenta.

She's had on going problems turned put she has stuffing of the muscle down her neck and and a little under chin, she gad physio and also got diagnosed with global develop mental delays..

she didn't sit up or roll over till she was over a year led she doesn't really talk much a load of other jibberish but some words you can make out, anyways things were bugging me physio said she had quite bendy legs so I asked if it as possibleasy she has hypermobilty and she said yes and that she never thought about that.

So she got diagnosed with that she started walking at two then one weekend she kept say her legs were hurting and she wouldn't walk so took her to a and e who tried to send us for an xray but couldn't be done because she was so restless so they made can appointment to go back which then they admitted us for the weekend they did all tests and everything was clear they did more xray cam back clear so we go discharged she started walking again and hasn't really stopped like that...

but now she's 3 I was trying to aim to get her out the push chair and walking but we run in to problems when she walks to nursery she'll only get so far and say her legs are hurting to the point she's crying ( I feel so bad) but now she only makes it half at down the little Hill and she keeps saying 'ow it hurts'.. she's fine in the house but she knows she can rest if she needs too.

.how do it encourage her to walk if i there sore? I've tried getting her to walk with her dolls pram but it's the same again.. she doesn't alk up or down the stairs she us currently potty training to and gets the idea of that.she'srently getting tested for autism.

She had some signs pediatric agreeswith me and sees what I see she is a lovely little girl with a big personality but I'm struggling to get her to mix socially she's fine if kids are running about but she doesn't like to be near them or touching her or sitting next to her..

it's hard going to family memembers because she constantly cries..the kids do bully her though constantly biting hitting and pulling her hair sitting on her etc and as she can't say she points to what's happened buto people shout at her because she can't express how she feels she doesn't hit or bite back.

Clothing she is fussy of she will only whee if they've got certain things on she won't wear fluffy jumpers or jeans should oestrogen if something wasn't hers she won't wear it,

she got given some clothes that belonged to my niece but won't wear them, food she will only eat flood the codour of her skin..she won't eat meat on dinners she won't allow sauces from beans and spaghetti go all over other food on he plate , she's got to have the same coloured fork or spoon to the dish she has.sometimes it's a struggle to get her to eat.

She loves music and loves to dance..if we go from Sunderland to Newcastle by metro and she'll go thru every metro ostation we stopped at she's good at matching things she'll have to have things lined up if she doesntcthryvall have to be the same way I could go on lol but I'll let stop there any ways thanks in advance

Hope you don't mind but I put paragraphs in, to help others read your post.

I think it sounds you're doing a very good job with your little girl who has obviously had a number of issues.

How is her language developing? how much has she got?

Your family members' kids bully her? I'd put a stop to her visiting them if that's the case. Sounds like you're doing a good job.

It sounds like you are looking at diagnosis for other issues, but regarding Hypermobilty my youngest was the same. Slow to sit up and walk. Often finding it hard to walk more than short distances. She was fitted with insoles by the podiatrist and they have made a big difference as they stop her ankles rolling when she walks. She was still using the buggy when she started school at 4yrs 3 months.

Often children with hypermobilty will over do it one day and then walk less the next day, so better to do little and often rather than making her do long walks. Maybe start off walking and then let her in the buggy when she is tired. Trying to build up a little at a time.

Just wanted to say my Mum's experience was very similar. Didn't know she was pregnant until a couple of weeks before my birth. She did not feel me kick and claims she had periods throughout. I had hypermobilty as a child and was slow to walk, not very sporty and an extremely picky eater but otherwise healthy, so a difficult start doesn't always mean things can't get better.

Have you read about tactile defensiveness? This can cause problems with the feel of clothes or grass or sand and food.
Or
www.sensory-processing-disorder.com/sensory-processing-disorder-checklist.html

Her physiotherapist hadn’t considered the possibility of your dd having hypermobility? Could you ask to see another one? Has she got low muscle tone too? Has she been given any exercises to strengthen her legs and her core?

My dd has autism, dyspraxia, hypermobility and low muscle tone. I had to use a pushchair for her until she was 5 1/2. Walking further than 10-15 minutes would hurt her legs. Repetitive exercise like walking seemed worse than using playground equipment. Can you take her swimming? It’s excellent exercise. Try and encourage small bursts of exercise, ‘natural physio’ like using playground equipment and look at peanut balls that you can do exercises on.

Perhaps see if her paediatrician would refer to an orthotist (my dd has been given special inserts for her shoes) and rheumatology if appropriate as it seems her hypermobility is causing issues.

I can definitely relate to the sensory issues. Ask for a referral to an OT, preferably one with experience in sensory integration therapy. We’ve had to go private to get ongoing sessions but the NHS OT did at least give us some handouts on creating a sensory diet.

I appreciate it’s not easy to stop seeing family members but watch her like a hawk while you are there and pull the other kids up on any bullying behaviour every single time.

It’s great that she has you fighting her corner.

Did you drink during the pregnancy because you weren’t aware you were pregnant? I’m not getting at you - you obviously couldn’t have known. But maybe she has fetal alcohol syndrome?

The physio agreed with me but then signed her off when she could walk.

She did have special boots but they stopped giving her them when physio signed her off.

I had one or two glasses a week through pregnancy but they said that wouldn't have effected her they checked her for that to be sure.

Scans all seem fine, they want her in school nursery now so they can moderate if she's going to have learning difficulties and if she needs to go to special school.

Her speech is delayed quite abit they said but not thru myself. I say things and get her to try make a sentence while she asks for something.

Health visitor and pediatrics are pleased with how I'm coping.

She hates routine change if am going anywhere I have to tell her in advance too.

Yeah they said she has sensory issues, food she use to love when younger she won't eat now.

I feel awful when she won't eat the food is make her. Cereal she will eat that till it comes out her ears haha.

I make homemade spaghetti bol and sometimes I have to pretend am getting it out of a tin for her just so she will eat it, sometimes it works and sometimes it doesn't.

She won't eat actual pasta, she hates anything strong smelling it puts her off and makes her gag.

The only time she will eat bread is if she's have a very small amount of jam on it.

I don't give her chocolate I thought she was lactose intolerant because every time she had dairy products she had really really bad nappies so for 6 months under supervision of a dietation, started back on milk and cheese and yoghurts she seems fine but when given chocolate I've noticed this is when she has the smelliest horrible nappies.

She loves watching things on repeat 😣 so her morning routine she gets up has breakfast gets ready she likes to have the TV on while playing so she has paw patrol on ( she has some of the figures so she role plays out what's happening in the episode).

Health visitor said sheas learning to talk thru programmes so she repeats what said. She's sings and she dances.

She hasn't gone through the terrible two stages, she gets protective over toys she hates people touching them unless she gives them to you.

She hates people making a fuss over her recently it was her birthday and they sang happy birthday, she had a meltdown because she didnt understand why they were singing.

I've noticed thou when it was snowing she would walk from mine to her nursery but only when the was snow. Someone told me this could be because to her on warm days her muscles feel hot so when it's cold like snowing it cools it down.

That sounds tough OP. Do you have a diagnosis? The neck sounds a bit like turners syndrome. Have you seen a geneticist?