2 year old fitting

[Miko2122]

Hi can anyone giv me sum advice?i have a 2 year old little boy.he has his own toddler bed and shares a room with me and my partner in a large room and has settled well since christmas.he has never been the greatest sleeper since birth waking on average 2-3 times a night just to b reasured and comforted.on sunday he spent a lovely day outside playing in the garden with his siblings running around,he had a bath sum tea and i put him to bed like always and he settled quite quickly.he woke in the early hrs of the mornin cried out so as usual i went to reasure him and he nodded bak off.At 4.30am i woke to a grunting sound and shot out of bed to check him.i called his name but cud tell there was something wrong.i scooped him up in one arm hit the lights n layed him on our bed.to my horror he was fittin his beautifull big eyes wide open looking up head tilted bak ,his bak arched his body jerking stomach sucked in making a grunting noise and his lips turning blue.i shouted my partner to call an ambulance and kept sayin my little boys name asking him to look at me n please b ok.i got no response and the panic began to set in.i even blew in his mout the try n get a reaction.i layed him on his side checked his mouth n kept begging him to b ok.after 30-40 seconds of fitting he stopped and i thought rite there n then id lost my child,id just watched his last moments.Thankgod they werent,i rested my head on his chest and he was breathing but very fast and his heart was racing.his face was clamy and he was soaked in urine,he had filled his nappy like neva before and it had leaked reached his chest.i shouted his name and got nothing from him he was all floppy his eyes had closed but he was breathing, i just begged him to b ok.the paramedics came and did checks on him his sugars bloodpressure oxygen sats and temperature.they saidf his temp was 37.5 but was coming down n his heart was fast but that was probably because of the fit but was gettin better.with all the prodding and poking my little boy began to come round and eventually opened his eyes and cried out.the best noise ive ever heard!we went to hospital had more tests spent the day there for everything to come bak clear and they said it was a febrile seizusure usually caused by a high temperature which causes them to fit but nobody really knows y they happen.glad everything came bak clear but confused and scared because we dont have the answer as to y it happened at all.3 days on my little boy is ok.he was initially really tired but getting there now.me on the other hand am not doing so well.ive moved his bed so hes right next to me incase it happens again,i dont sleep much at night constantly checking if hes breathing if hes too hot if his mouth and noes r covered i watch him like a hawk and re-live everything that happened that nite.i cant let it go.i kno we did everything right and hes ok but i still see his face his eyes haunt me the sound he made echos in my memory i see his body convulsing and i wonder if he knew i was there calling out his name if he was scared or didnt he kno anything.i cant shake the images in my mind i dont kno how too.im so scared it will happen again how am i eva gona move on from this?

Oh gosh, poor you, it have been terrifying. Good that they found nothing serious though.

He probably doesn't remember it, and even if he does does then it won't be in the same way as you do where you were panicked about losing him.

Lots of children have a febrile convulsion and never go on to have another one. Your fear will fade slowly over time, but in the mean time not sleeping well and checking on him lots is very normal .

Could you put a mattress down by his bed for a few weeks for you to sleep on and get some decent rest?

Use a baby video monitor. Keep an eye on him during the night for a few months just in case it is epilepsy. Get him a seizure pillow and don’t leave him alone in the bath.

if it helps I had fits as a child and no, you don't know anything, you just wake up. It's really really tiring and I can only describe it as waking up feeling exhausted and achy and confused, so you can be upset/grumpy/angry
If it happens again, don't hold him down or put anything in his mouth, just make sure he's somewhere safe and check his breathing when it stops. It's really scary but you have to just let them fit and then comfort him when he wakes up, and ring 999

It’s hard took me a year to get over it my boy was 2 at the time, was ill constantly every month with various infections, he woke one night crying out and was shaking couldn’t stop I knew something wasnt right with him so we headed straight to A&E, just as we arrived he went floppy in my arms the exact way you described we screamed and staff grabbed him off us ran straight through and cut all his clothes off him etc i was breaking my heart as he was going blue at the time i didn’t know what to do, given oxygen etc drips everything eventually came round loads texts and they said febrile convulsion as he had 3 infections at one time, it is so scary but it will get better

Tests

Why are they so sure it's febrile convulsions if his temp was 37.5. That's not that high. Have they ruled out other types of seizures?

And it's horrible. I'm sorry. Take care of yourself. Those sort of flashbacks can be quite lasting so make sure you look after yourself x

My son was 16 months with his seizure . High temperature within a very short space of time and an infection. It is the scariest thing i have ever been through so completely understand how you feel. He has not had another one since but I was given medication for him in case it does happen again. But with the advice to always call an ambulance.
He was kept in for 24 hours on monitors then released

I feel for you. My two older boys had these. My eldest son just once and my 2nd son twice.
Firstly, it's far more common than you think. I know it looks horrific at the time but it's your sons body trying to cool itself down really fast.
It's more common in boys under 5, and it's often hereditry.
It's not because the temp has risen, it's triggered because his temp has risen too fast or dtopped. The emergency system kicks in, sweating, excreting and shaking.
Your son won't remember much. To be in the safe side, I always called an ambulance, and just make sure his tongue is not flipped to the back of his throat.
The chances are it will never happen again. But to be in the safe side, if you can, give him calpol and if kids nurofen if he shows any sign of being poorly.
Weirdly though, each time my sons had a seizure, they hadn't shown any sign of being poorly, before or after. So I always made sure they were cool in bed and never wrapped up too much. Maybe get blankets so once he's asleep you can remove the douvet and just lay a cool blanket on him instead.

I think these seizures happen because the hypothalamus ( temp control) in the back of the brain isn't matured fully until some boys are about 5.
My boys are 17, 16 now and never had one since they were about 2.
My younger son though would get really floppy and very sweaty and pale if he got to hot and would vomit at night regularly in the summer, so I would put a frozen bottle of water next to a fan to blow cool air into him whilst asleep. ( he still lives in his boxers now...hates being dressed)
Fingers crossed no more for you guys. It's horrendous.