Oxybutonin any experience of this?

[Owletterocks]

My ds wets frequently, he is under the continence team and he has a tiny bladder capacity. There is talk of oxybutonin to try and relax his bladder and allow it to fill and empty a bit better. Does anyone have a child who has been on this and has it helped? Thanks

Hi my 10 year old takes this twice a day. He started on desmopressin and then added oxybutynin in the evenings, which really helped but not fully. He also had trouble holding his urine for more than around 15 minutes (if we were lucky)

He now takes just the oxybutynin twice a day and he can hold his urine for around 1 hour and is dry at night. This has changed our lives massively!

My youngest is on it. It's a godsend! No more up and down at night and a million trips to the toilet during the day.

Thanks for your replies, that sounds hopeful. We are giving him another month to see if tweaking his fluids will help but I can’t see it working. He is just wet all the time, it’s such hard work and I feel so sorry for him. He can go to the toilet 4 times in an hour and still wet in between, it’s disrupting school and he is constantly needing to get changed to go anywhere. Did either of you use any products to help stay dry before you started the oxybutonin?

Fill the charts in meticulously over the weekend and take him back. Tell them it's disrupting life too much and you want to try the meds now. It doesn't sound as if it'll be fair to make him wait a month, he must be fed up.

For the overnights I put a plastic jug in the bathroom and asked him to just add to it when he got up during the night and I marked up the total to input with a note. I don't know how old your son is though.

We upped fluids to 3 litres a day to try and stretch his bladder (he still drinks that much now) but nothing changed, he just wet more. We did try encouraging him to hold for as long as possible but we could take a trip to the supermarket and he would go to the toilet 3 times and be desperate before we got home. AT 7 years old he had a bladder capacity of 120mls and now at 10 years old he has a bladder capacity of 230mls. This was a long process and didn't help fully until he took the oxybutynin morning and night..

There is a Facebook group - "Daytime Wetting in Children and Teens" which may be helpful for you to join.

Have you explicitly excluded faecal loading by xray, as this is a common cause of wetting?