Cyclic vomiting syndrome query

[BeeMyBaby]

We moved abroad 5 months ago and in that time my DD2 has had 6 vomiting episodes (she rarely was ever sick in the uk, maybe 3 times in her life, she is now 7), so it's really unusual for her to be sick this often. No one else in the family (2 other DCs) get ill so I don't think it's a bug. I googled frequent vomiting and cyclic vomiting syndrome is what came up and her symptoms fit. She will wake up at about 2.30-3am, pale and shivering and feeling very nauseous then will have diarrhoea/vomiting till about 4.30 then go back to sleep. She is then completely fine during the day, just a bit tired.
Anyone else dealt with this? Did you find a trigger which caused it?

Hi. My son had the same from age 7 and was eventually diagnosed with cvs. He would wake up a bit later, around 6 or 7am and have sickness and often diarrhoea for about 3 hrs. He would then fall asleep and wake up feeling better and hungry. He was diagnosed by a paediatric gastroenterologist and given medication to take immediately to try and reduce the sickness which it did slightly. Never really worked out triggers. I kept a note of the episodes and it could be between every 2 weeks to every 3 or 4 months, He's 19 now and had the last episode about 3 years ago.

My daughter has it. She developed it around age 4 and it took me a while to realise what it was, but one week in year one it happened on a Sunday evening and then again on the Wednesday (so she basically missed an entire week of school).

I kept a diary of her food and anything else we'd done the day she vomited, also how hot/cold it was in her room and outside and it anything stressful or unusual had happened the previous day.

After a few months, I was able to work out that her triggers were being overtired, combined with eating fruit (or anything acidic) before bedtime. We stopped the fruit and she's only had one incidence of it since - which is when she forgot and ate a tomato just before bed.

I'd guess that it must be partially related to your move, maybe the temperature, going to bed later, more stressful??

Thank you so much for your replies - I'm not sure if I could cope with her having it till she was 16 though! @PJ67 How did your son manage it, was he very stressed about it?
@underneaththeash I read online that it could be to do with monosodium glutamate which is apparently found in colourings/flavourings/trans fats/hydrolysed proteins which they have in a lot of food here. I think you are right about the tiredness as she is not sleeping as early as she should here and is grumpy and is doing more exercise than she used to. Interesting what you said about fruit and acid, not sure if it counts but she had tomato ketchup the last time, before that she had a tomato based rice thing and before that she had pizza (I can't remember what she ate the other days).
Had your GPs heard of CVS or was it specialists who told you about it only?

Our GP had never heard of it - I took a print out of the condition to our appointment and then asked her to refer to a specialist, who then confirmed.

I have CVS.
Triggers: overexertion, little or no sleep, eating too little, missing medication, heat

@PatricksRum when did it start and how long has it being going on for?

My DH took my daughter to the paediatrician yesterday and he had heard of CVS and seemed to agree that it was quite likely (she was vomiting yesterday morning so he was able to see her on the day and rule out that it was any kind of virus or food poisoning). He's ordered her to get blood tests to check liver function etc to rule out anything more sinister and has advised us that she is only to eat homemade food as the bought snacks tend to have a lot of additives in them. Hopefully it will improve as she has thrown up 3 times in the last two weeks so misses a fair amount of school.

I had CVS as a late teen, early 20s. Mine was def an over tired, dehydrated, too much sugar relationship - just as the migraines mine turned into are.

Hi op, my daughter is being investigated for nausea with spells of vomiting, generally she is well inbetwen. It came on over summer school hols. She had treatment for Helicobacter which was the only stool test positive, then had a few months of calm before more bouts since new year. She’s under gastro now, blood tests neg for coeliac and inflammation, small bowel ultrasound ok, maybe a bit sluggish.

Hers tends to wake her up or come on not long after waking. Once it’s gone she is back to normal, albeit tired. She might need an endoscopy and food elimination trial as she also gets acid and cramps. The gastroenterologist has mentioned cvs, functional problems, slow transit, food intolerance, post enteritis, post Helicobacter. It’s a process of elimination I understand. It’s horrid when she has it, I try to keep calm. Exercise seems to help her, as does a rather bland diet, less processed food.

DS had this at around the same age. He ended up in hospital on one occasion as he vomited so forcefully that he tore his oesophagus

He was then prescribed ondansetron (anti-sickness medication) which worked well, but he grew out of it (or so we thought). Recently ended up in hospital with what we think was the same thing, aged 17. Not sure we ever worked out what his triggers were though, to be honest.