At breaking point.

[sugarplumfairy28]

Our DD is 7 has suspected Aspergers, Sensory Sensitivity and exceptional intelligence, all of which we are in the process of getting diagnosis' for BUT at the moment I am having to wing it on a daily basis, with no support or advice.

She has had a fairly bad week, lots of things have not been routine and she has been a little unwell and every day has been a battle. Yesterday she perked up and I explained that today we needed to go to an open day at a new school for our son, she seemed OK with it. This morning she was fine and then something triggered her. We were meant to be out an hour ago, and as of right now she is still refusing to get dressed, she is throwing things in her room and I have nothing left, I don't know what the problem is, and I don't know how to try and help her move past it. It is incredibly important that we go to this open day. I am sitting here shaking because I just don't know what to do.

I have tried the usual bribery, saying we can look for a park to play in, we can go to the bakery, she can bring a toy, she can wear anything she wants, and still just grunting and screaming. I am torn between how much I hate seeing her like this and desperately wanting to help and how all of this is impacting on everything else and how even the most important things are being let slide.

Oh I’m sorry, that sounds incredibly hard. I don’t have any experience to be able to share or offer a suggestion, but just wanted you to know that you’ve been heard. It sounds like you’re doing the best job you possibly can. I really hope you get the specialist help you need soon. Is there anyone who could stay with your DD while you attend the open day?

Thank you for replying. Unfortunately we are fairly isolated but my parents won't take her unless she is being 'normal' and the first sign of any problems she is given back to us. Have to say it is making me feel more and more alone in all this.

We did just about manage to get out. She was on the brink of a meltdown when I posted and we just had to ride out the full blown meltdown when it hit. It is just so consuming though. She likes to aim her frustration at her brother and I end up acting as a human shield, I am bruised and battered, exhausted and just feel like I'm out of ideas.

So sorry to read this, I could’ve written it about my 7 year old son he sounds very similar and I know how incredibly exhausting and isolating it can feel.
No real practical advice but you’re not alone and I hope you can get the help you all need x

Thought I'd just check back in. DD has been diagnosed with Sensory Processing Disorder, and we have now had 3 different doctors all evaluate her and say she has Aspergers. We are a month away from the next appointment, where the consultant will have pulled all the notes and evaluations together and hopefully give us an overall diagnosis. The Christmas break has been difficult for her, sleeping and eating have been become battles and she didn't make it into school first day back.

I feel like my parenting skills are just a constant trial and error and she is the guinea pig. I am really hoping a diagnosis will allow me to access some kind of specific advice i.e during meltdowns do I leave her where ever she is or construct some kind of soft safe area and relocate her. Do I continue not sending her to school when I see the precursors to a meltdown or something bothering her, i.e grunting, refusing to get out of bed, unable to make eye contact, refusing to get dressed, or do I push the issue.

Obviously if anyone has any advice I would be very grateful