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Can I get some parent opinions vs what the Paediatrician has said?

32 replies

FTMF30 · 10/10/2018 10:09

Hi there,
I'd really appreciate some opinions from mums/dads as I feel a bit let down after my DS paediatric appointment.

For some background context my DS is 15weeks old and I'm pretty sure he has silent reflux and some serious gastro/wind/pooing issues. I also suspect he might be teething.
Symptoms are:
Constantly dribbling
Blows raspberries/builds up spit and swallows it
Difficulty breathing when laid on back
Sometimes coughs/splutters and sometimes chokes (maybe on spit)
Makes clicking sound when feeding
Has become very fussy on breast but takes expressed milk a little better
Morning wake ups consist of crying and straining to poo.
His poos recently seem very mucousy
He will cry and scream in pain some evenings.
Has a very slightly tongue tie but numerous people have said it's not problematic so doesn't need to be
He brings back up milk but then swallows

I've taken him to the doctors a few times. He'd been prescribed infant gaviscon which seemed to help the reflux but caused awful constipation. He'd also been prescribed ranitidine but reacted badly to it. So then he was referred to a paediatrician. Some things the paedi said that bothered me.
*she prescribed a new med (ompez something) I asked what the side effects where, she said there were none. Upon looking at the box at home, there were loads, including constipation! Why would she tell a blatant lie?
*I asked if his tongue tie could be the issue. She tried looking at his tongue but DS wouldn't cooperate. She just said it's not likely to be an issue as he can feed fine😐. I had already said feeding was an issue and has become worse.
*I told her he's had less wet nappies and she said it's fine as he's gotten older so he can hold his wee for

  • I expressed concerns about his weight as he was 6lb 6oz at birth and is now 11lb 3oz. She said this is fine as he has not moved down a centile on the chart. However, at birth he was close to 9th centile and now he is just below 2nd centile😐. *I asked about his problems/discomfort with pooing for his age and she said it's normal and he'll grow out of it. *I asked if he could be teething as he dribbles all the time and now has suspected diarrhea. She said definitely not as he's too young.

I got the impression she thought I was a neurotic mum. She asked if DS is my first child, which I feel is irrelevant. I didn't ask to see a paedi, the doctor referred him. I'm no pushover but I felt things were becoming a bit arguementative do I left feeling quite dissatisfied.

I'm at my wits end with my son's symptoms. He cries and screams so much and I can barely put him down. The poor more seems in such discomfort most of the time and I feel exhausted. All the paedi did was completely dismiss my concerns and prescribe a medicine which I'm quite wary about.

Can any of you give experiences opinions on the things she has said. Is she correct or is she talking gripe?

Thanks

OP posts:
Are your children’s vaccines up to date?
ElyElyOy · 13/10/2018 23:19

No Dr would prescribe omeprazole to shut someone up, it’s very expensive and they only prescribe it if there is a need. It’s a brilliant drug and the next step. My son can’t look at gaviscon without getting constipation but never had issues with omeprazole. There are side effects, but not common (and probably not worse than the symptoms it solves!).

If you suspect CMPA you need to be completely dairy free 100% of the time. If after 6 weeks of being completely DF then you could consider other potential triggers (soya, wheat, egg are probably top 3 with soya being most common).

Some of what you describe is normal, some sounds like reflux to me (especially the laying down and swallowing - for my son it was acid rising).

Paradyning · 14/10/2018 08:46

Omeprazole is amazing

Witchend · 14/10/2018 15:28

He does sound totally normal.

Asking if he's your first is relevant as you have a "normal" to compare with, plus you've then been round other parents with babies. If I'd had my second first, then I'd have been worried about her, as it was I had been round enough babies by then to know that she was normal, and just fussier (and never wanted to go down/sleep etc) than dd1.

ZigZagZebras · 14/10/2018 15:38

Ask your health visitor for contact details for a breastfeeding councillor/adviser.
The clicking sounds like poor latch, my premmie did that when she was learning to feed where she wasnt getting enough of my breast in her mouth so kept coming off slightly making a clicking noise. A poor latch will likely increase wind worsening spitting up and wind/colic.
I would think if you can get the latch sorted out the other issues should improve, have you checked for tongue tie/upper lip tie yourself?
Also have you tried 'pinching' your boob slightly when latching him on to make it easier for him to get more in his mouth and trying to make sure baby is latched on to as much as possible rather than closer around the nipple?
Try to wait for his mouth to be wide open before latching, and have a read up on best neck position for him feeding if you haven't already.

Yellowsunredroses · 15/10/2018 07:47

Welcome to the world of paeds where it is totally normal and routine to make ‘mum’ as you’ll endlessly be known feel shit. Do note they’ll never treat your partner the same way it’s always reserved for ‘mum’ who is no doubt neurotic/depressed/seeing symptoms that aren’t there/anxious/ not feeding properly/doesn’t know their child

So basically I’m saying whilst the things you describe CAN be normal I believe you that you think there is more to it

I second a pp that said consider larygnomalacia - reflux and this go hand in hand

seven201 · 15/10/2018 14:35

Sorry I've only read your posts, not everyone's.

My dd had silent reflux and cmpa (still has). She outgrew the silent reflux just before turning two. Omeperazole was a game changer - give that a proper try. My dd was so much happier after the gp finally prescribes that - I'd asked for it for months but only got it at 10 months.

You say you try and avoid dairy. You need to exclude it properly ie read all labels, not just guess/hope. It's not fun but do-able.

I think it's great you got referred to a paediatrician so easily. It took me 22 months of asking until we were given one!

Good luck

FTMF30 · 28/10/2018 15:55

Hi guys,
Thanks for the later posts/suggestions.

To give you all an update, I rang my HV and expressed my deep concern about his tongue the being a suspected issue. She put me in touch with a breastfeeding lady who confirmed his TT seemed pretty 'thick' and said I'd done brilliantly to have lasted BFing as long as I did. She said unfortunately we won't be able to get it snipped for free because of his age but recommended a private TT specialist. To cut a long story short, we went to the specialist and DS scored low on the TT assesment so we got it snipped that day. This was a few days ago and I can already see a marked difference. He is struggling to feed sometimes as he gets used to his new tongue but I'm sure it will improve in the next couple of weeks. He's definitely had less wind and no clicking.

In conclusion, I'm glad I trusted my instincts and have lost faith in many so called health professionals, especially the utterly useless paediatrician who have an opinion without even looking at DS' tongue.

Thanks again for the advice all!

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