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Something isn’t right with my ds but I don’t know what...

30 replies

Ilmb · 01/08/2018 12:45

I have an almost 10 year old ds. Last September he changed a lot quite quickly. He has always been my more laid back dc, always happy, no problems with him. I have other dc, one who’s autistic and this obviously causes problems but he’s always dealt well with it.

Last September he changed. He started getting into trouble at school. Not really badly but enough to get called in a couple of times. I spoke with his teacher quite a few times about the change in his behaviour, she happened to also be the senco. He was under a paediatrician at the time as I think 2 years ago he was having a lot of head aches. He had an mri just to check all was ok and it was clear. I was told as I suffer from bad heads he’s just the same. I spoke with the paed about the changes at school and she knows Home life has always been hard for me (LP with the dc and troubles with the autism etc) and she referred him to Camhs as he has a lot of anxiety. Camhs rejected the referral (I knew it would be as my other dc already under Camhs so I know the system well). Teacher then did a Camhs referral and it was rejected. They said I should pay to privately get a counsellor which I can’t afford. At his next check up the paediatrician said it wasn’t good enough and re referred to Camhs. Again it was rejected. Then fast forward to beginning of this year. I said to the teacher I need help with him. His personality has changed. One minute he’s fine and lovely and the next he snaps and will go ballistic, throwing, screaming, cause fights with his sibling, screaming literally like a banshee. Later he will apologise, then cry and get really upset and say he doesn’t know what’s wrong with him.

School then did a referral to the school nurse team who has started seeing him for the last month or so each week. He sees someone and it’s similar to play therapy. I throught this would really help but Iv seen no change. He engages fine with the man he sees.

We currently are on holiday. He went ballistic over something of nothing. Tried to help but he just started kicking bark at me saying I don’t care.... Iv told him repeatedly I love and care for him but he says I don’t care. He’s calmed down and came to me just now to apologise. Promises he won’t do it again, I said to him I don’t know what is wrong and why he keeps behaving like this but he gets upset and says he doesn’t know and doesn’t like it either.....

I can reason with him and when he’s fine he’s lovely. This is now virtually a year. Nothing has changed.... School say no problems at school... I know hormones are kicking in but i don’t belive it’s that. Any ideas?!

OP posts:
Ilmb · 02/08/2018 11:05

Just to reiterate, School has only been a problem since September, him getting into trouble is new. The one thing they’ve said is he is ‘too hyper vigilant’ in the classroom. Meaning he is on high alert....

OP posts:
LadysFingers · 02/08/2018 12:13

Yes, that is my other thought. It happened to me and several of my friends with a sn child - we are so taken up with the one, whose needs are so obvious; that we didn't notice the other apparently "normal" DC has sn too! In my case, DD2 had ADD. I knew there was something wrong with her executive functioning from the age of 12, and obtained several private assessments, who found problems with comprehension and processing, but not diagnosis. It was only as an adult that she got herself diagnosed with ADD. Had I just had her, I would have had more time and energy to pursue a diagnosis while she was at school!

Oh, her school did not spot the ADD, even though I raised my concerns about her from the age of 12 to 18! Even at 18, the SENCO was arguing that she did not need extra time in exams, even though I had a professional report, saying she did!

I'd take the opinion of any mainstream school with a large pinch of salt!

Ilmb · 02/08/2018 16:37

Iv never ever had a doubt with him though. I know autism is a spectrum, I know hat no 2 children on the spectrum will be the same but I don’t think he is..... I don’t think.

He’s fine with change, our lives revolve around autism... he loves sports, as I said loves being with friends, loves going to the park etc at the last minute..... etc etc moving like his sibling.... he definitely struggles with instructions though. When Iv said something different way he will understand then but will say ‘I didn’t understand you the first time’ but I don’t think that’s enough ...

OP posts:
dovegrey18 · 02/08/2018 20:49

Just wanted to say you sound like such a wonderful, caring parent. Don't give up Thanks

Ilmb · 03/08/2018 06:29

Thank you dove. I won’t give up, I’m just at a dead end and don’t know which way to turn!

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